1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

  1. byrnedjp

    byrnedjp Registered User

    Mar 21, 2013
    168
    London
    I have no Social Worker, Carers Centre refer you elsewhere because of "budget cuts", Dementia Advisor on long term sick leave, everything thing else is "volunteer" based or part time and call between 2 and 4 on a Thursday

    Great Times
     
  2. Sue J

    Sue J Registered User

    Dec 9, 2009
    8,041
    TP's here byrnedjp so don't feel alone but I know exactly what you mean re. real practical care support, its far from easy.

    The breakdown of the social care system is appalling and never will it save money:mad:

    Best wishes to you
    Sue:)
     
  3. byrnedjp

    byrnedjp Registered User

    Mar 21, 2013
    168
    London
    Thanks

    Suej

    x
     
  4. 1mindy

    1mindy Registered User

    Jul 21, 2015
    539
    Female
    Shropshire
    It is clearly very different depending where you are in the country. I have recently been having a really bad time with my OH and cmht have been more than amazing. My cmht nurse calls in a couple of times a week to see how we are going on. She says she can come every day if I feel like I need her.Today she has phoned and is coming out with the sss assessor for OH. The. Consultant came out with the nurse a few weeks ago to discuss his medication. Just fab .Can't speak highly enough of them.
    Sorry your not getting the support as it is vital or you will feel so alone. Thinking of you.
     
  5. byrnedjp

    byrnedjp Registered User

    Mar 21, 2013
    168
    London
    Thanks 1mindy

    Its just the realisation that there is no help out there - as in the case of the dementia advisor - built up a relationship over the past 2 years - shes knows all the details of my struggle with the District Nurses - then when i have a Formal complaint to make she disappears on long term sick leave
     
  6. marionq

    marionq Registered User

    Apr 24, 2013
    5,857
    Female
    Scotland
    As you say, it is patchy, not only geographically but between the services, I have been very impressed by NHS services delivered through Consultant and CPN and more recently when John was admitted to hospital with a chest infection.

    Social services seem to be less efficient or understaffed and resourced. It is hard to work out at times exactly what their problem is. If I call into their local office there seems to be a surplus of people wandering about or sitting at desks but the front line staff who need to be making major decisions and calling out to do assessment seem to be thinner on the ground.
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.