Aisling.
It's very difficult to keep going with the twists and turns being sprung on you, not only in T's rapidly changing condition, but also not being informed of decisions in a timely way.
Would it help to write down what you want for T in clear bullet points what you expect from the professionals etc as POA, along with putting down all your questions -- then present these at the next review?
Have you a contact for the hospital SW. S/he is T's representative in hospital and it's their job to gather info from all the different strands for you. Otherwise you'll be speaking to anyone and everyone who might mistakenly misinform you. It's also one contact you can keep ringing and/or leave messages voicing your concerns.
My heart goes out to you so much, you sound utterly shell-shocked.
Please keep posting.
Big hug x
It's very difficult to keep going with the twists and turns being sprung on you, not only in T's rapidly changing condition, but also not being informed of decisions in a timely way.
Would it help to write down what you want for T in clear bullet points what you expect from the professionals etc as POA, along with putting down all your questions -- then present these at the next review?
Have you a contact for the hospital SW. S/he is T's representative in hospital and it's their job to gather info from all the different strands for you. Otherwise you'll be speaking to anyone and everyone who might mistakenly misinform you. It's also one contact you can keep ringing and/or leave messages voicing your concerns.
My heart goes out to you so much, you sound utterly shell-shocked.
Please keep posting.
Big hug x