Expert Q&A: Rare dementias - Tues 3 March, 3-4pm
Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.
You can either post your question >here< or email them to us at firstname.lastname@example.org and we'll be happy to ask them on your behalf.
I echo what Molly says Aisling. Prayers sent out to you and T for added strength. xx
So sorry you're going through this Aisling. I hope things start to look up soon.
It's all really unfair & hard to believe that this is the best we can do for a person in need!Hi Jorgie, Molly and lady A. All scans and X-rays are fine. Query regards d diners in blood as they can cause clots. Still on drip since Sunday. Med staff are brilliant but waiting for input from psyc staff as some meds hav driven t mad. He allergic to some drugs and his body went toxic. Meds are frustrated with no input from psy where t was resident.
So am I. Hospital contacting them daily and so am I. Nothing happening. All this deterioration happened in psyc unit. Staff in hospital can do everything for t with no fuss. The whole scenario baffles me. Am sick with worry. So tiring sitting at hospital bed. T ha no idea who I am. He is sleeping a lot.
It is a nightmare. It so difficult being totally on my own. Hospital will discharge him back to psyc unit as med scans etc are clear. This worries me as he is not really responding and no food for a week. Am going to ask them not to discharge him until he is responding and eating. No invisible
Aisling, so sorry you're in this desperate situation, I do hope there is some resolution soon. xxxx
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Tim discharged back to psyc unit as they suggested they were more qualified to deal with him then thy realised by are not allowed to use drips!! Back to hospital next morning and still there. On drip and more visits from SALT and dietrition. He settled tonight so I cm home to get some sleep. Hospital staff are amazing I dread to think what will happen when he is discharged back to psyc unit.
Why have we designated NH for Alzy and then they can't cope? I am beyond angry at this stage. T holds his head to the side near his shoulder. Huge bruise on neck now. Happened in psyc unit over the two weeks. Hospital concerned about it. So am I.
You have all experienced sitting at bed day and night. It is truly exhausting !!
Lots of love,
Update.Likewise, just sending a virtual (((hug))), Aisling. X