Nursing homes

Aisling

Registered User
Dec 5, 2015
1,804
0
Ireland
Nursing home,

Hi everyone and thank you for replies. I can't figure what is going on. Went to c T today and was told he was being transferred to another psy place in town. In ten minutes!! All organised. Reason, more suitable, bed needed, more staff needed, t needs 1 on 1 et al!! As far as I can figure this is a long stay facility but T there for monitoring meds, behaviour and then going back to NH. The latter can't manage him at the moment. They assured me in June that they could manage all aspects of Alz. My niece (in medical area ) suspects that he won't be able to go back to NS. What on earth will happen then.


I don't know if I am coming or going.

I stayed with him in new facility for ages. Heartbreaking. He couldn't remember how to eat and refused help. A stones heart would turn over watching him.


I hate this disease and am so angry with our health board in Ireland. I have everything switched off except emergency phone and I can't be bothered talking to absent family members or invisibles!! All they will want to do is visit him, torment me and ask me stupid questions. My tolerance is zero at the moment. My focus is on T. Am rabbiting as I can't describe how I feel, devastated, angry, depressed, heartbroken and annoyed at lack of information. Why is a behaviour change seen as separate to Alz disease? I have read so many papers from specialists and researched it and some people have behaviour changes. All part of this disease.

Keep me in your thoughts so I don't go stark raving mad or flying through the fog with the dancing pigs. Fortunately I have no alcohol in the house or a life long pledge might be broken!!

Blessings to everyone,

Aisling xx
 

lemonjuice

Registered User
Jun 15, 2016
1,534
0
England
Keep me in your thoughts so I don't go stark raving mad or flying through the fog with the dancing pigs. Fortunately I have no alcohol in the house or a life long pledge might be broken!!

Blessings to everyone,

Aisling xx
Will do Aisling. Honestly sometimes I think we know more about this disease than the so-called specialists, because we live with it. :mad:
 

LadyA

Registered User
Oct 19, 2009
13,730
0
Ireland
Hopefully, you can talk to his doctor soon Aisling. Another change of environment won't be helping T right now. Please God, he'll settle quickly. xx
 

Lavender45

Registered User
Jun 7, 2015
1,607
0
Liverpool
Aisling I don't pretend understand the Irish health system, but I can feel your pain in what you wrote. I hope that things stabalise for T very soon and that he is in fact able to return to his care home.

Sending you love and a (((hug)))

Amanda x
 

Aisling

Registered User
Dec 5, 2015
1,804
0
Ireland
Hopefully, you can talk to his doctor soon Aisling. Another change of environment won't be helping T right now. Please God, he'll settle quickly. xx


Thank you. Spoke to his psy specialist the other day. All hopeful and now up in the air again. Imagine he was being moved and no one was going to tell me. He is so confused and so sad.

Aisling xx
 

Aisling

Registered User
Dec 5, 2015
1,804
0
Ireland
Aisling I don't pretend understand the Irish health system, but I can feel your pain in what you wrote. I hope that things stabalise for T very soon and that he is in fact able to return to his care home.

Sending you love and a (((hug)))

Amanda x

Thank you Amanda. I don't understand it either! Am just living from day to day now getting more confused. No sleep for me tonight !!

Aisling xx
 

Morty

Registered User
Dec 13, 2016
94
0
Southeast Ireland
Aisling, i know bit about irish healtcare for Alzhemiers\Dementia and its a pass the buck kinda system imo,hopefully youre in touch with carers society as they will advice about suitable institutions / nursing homes if thats whats needed,some are better than others, first they put you on a crazy long waiting list,however should be a community hospital place available,if your not happy with the place where T is, you will have to express that firmly in my experience to get place where you want,hopefully it will be all smooth transfer.thinking of you / stay strong / try to sleep and eat well ...
 

MollyD

Registered User
Mar 27, 2016
1,696
0
Ireland
Aisling, so sorry to read this.

It's all very shocking for you and happening very quickly. You sound completely exhausted and overwhelmed.

I hope you got *some* sleep.

It does sound as though this new facility is more geared for T's current needs and symotoms.

You should have been kept in the loop, however.

Pg, T settles.

Please keep posting. Tight hug xxx
 

stanleypj

Registered User
Dec 8, 2011
10,712
0
North West
So sorry you are having to deal with all this Aisling. It's really awful when you are not kept informed. I agree as well about the ignorance of so many so-called experts. It's so hard to know how to deal with all this stuff but I hope you will keep posting.
 

Aisling

Registered User
Dec 5, 2015
1,804
0
Ireland
Aisling, i know bit about irish healtcare for Alzhemiers\Dementia and its a pass the buck kinda system imo,hopefully youre in touch with carers society as they will advice about suitable institutions / nursing homes if thats whats needed,some are better than others, first they put you on a crazy long waiting list,however should be a community hospital place available,if your not happy with the place where T is, you will have to express that firmly in my experience to get place where you want,hopefully it will be all smooth transfer.thinking of you / stay strong / try to sleep and eat well ...

Thank you. The Nursing Home have sent T to this place to monitor his meds and manage behaviour incidents. All I can do now is see how it goes day by day. Health care system is abysmal here. People on trolleys in AnE every day in our hospitals.

Aisling.
 

Aisling

Registered User
Dec 5, 2015
1,804
0
Ireland
Aisling, so sorry to read this.

It's all very shocking for you and happening very quickly. You sound completely exhausted and overwhelmed.

I hope you got *some* sleep.

It does sound as though this new facility is more geared for T's current needs and symotoms.

You should have been kept in the loop, however.

Pg, T settles.

Please keep posting. Tight hug xxx


He was grand in NH and then I got sick.

Aisling xx
 

Aisling

Registered User
Dec 5, 2015
1,804
0
Ireland
So sorry you are having to deal with all this Aisling. It's really awful when you are not kept informed. I agree as well about the ignorance of so many so-called experts. It's so hard to know how to deal with all this stuff but I hope you will keep posting.

Thank you Stanley. What really angers me is that apparently behaviour problems are not seen as part of disease for some people. T is aware he can't do some things for himself and cooperates more with male nurse.

Aisling
 

LadyA

Registered User
Oct 19, 2009
13,730
0
Ireland
That was an issue with William too Aisling. It was the main reason he had to go to a nursing home. He needed male carers, in uniform. Thankfully, the nursing home he went to had a good ratio of male staff, and William never had any problem with any of them helping him.
 

MollyD

Registered User
Mar 27, 2016
1,696
0
Ireland
He was grand in NH and then I got sick.

Aisling xx


It sounds like you feel in some way responsible, Aisling. I could be reading that wrong but in case I'm not. You are not responsible. Dementia symptoms can change so rapidly for no *apparent* reason. I know you know this but I just want to you to be gentle with yourself. You are there for T 100%. You were ill, very ill and you needed to recover.

Hugs x
 

Aisling

Registered User
Dec 5, 2015
1,804
0
Ireland
That was an issue with William too Aisling. It was the main reason he had to go to a nursing home. He needed male carers, in uniform. Thankfully, the nursing home he went to had a good ratio of male staff, and William never had any problem with any of them helping him.


Male carers in NH could help T too. During th time I was so sick, everything seems to have gon wrong. I think that T missed me and there was no sensible person available to visit him. Psy agree with me that T is aware of his limitations and obviously confused.

Aisling xx
 

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