Hi everyone,
After appearing on TV with the NICE decision, my wife was asked a few times by people who knew us, how long I had been ill because I don't look as if I have Dementia. These people obviously do not know that there are various stages of the disease, and must expect everyone with it to be in a home or hospital.
I often look around when we go out shopping and wonder how many people around us have this disease and yet no one realises. We all look ok on the outside and yet the brain is slowly closing down. I often look back to when I was an engineer, and had to set up budgets and work out wiring diagrams, now they do not make sense. One thing I am asked on a regular basis is how did I get Dementia? as it I had picked up an infection.
Perhaps it is time to teach people about the disease, so that the public can get a grasp of the situation as it is and not as it used to be in the dark ages.
I know I am in the early stages of this and to be honest the rest scares me like many others, but while I can do things to help myself and others I would like to do so, in the hope that life can be made better for those who follow us.
Best wishes
kenc
After appearing on TV with the NICE decision, my wife was asked a few times by people who knew us, how long I had been ill because I don't look as if I have Dementia. These people obviously do not know that there are various stages of the disease, and must expect everyone with it to be in a home or hospital.
I often look around when we go out shopping and wonder how many people around us have this disease and yet no one realises. We all look ok on the outside and yet the brain is slowly closing down. I often look back to when I was an engineer, and had to set up budgets and work out wiring diagrams, now they do not make sense. One thing I am asked on a regular basis is how did I get Dementia? as it I had picked up an infection.
Perhaps it is time to teach people about the disease, so that the public can get a grasp of the situation as it is and not as it used to be in the dark ages.
I know I am in the early stages of this and to be honest the rest scares me like many others, but while I can do things to help myself and others I would like to do so, in the hope that life can be made better for those who follow us.
Best wishes
kenc
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