Not support but hopefully inspirational

Discussion in 'ARCHIVE FORUM: Support discussions' started by Canadian Joanne, Apr 20, 2008.

  1. Canadian Joanne

    Canadian Joanne Volunteer Moderator

    Apr 8, 2005
    16,154
    Toronto, Canada
    #1 Canadian Joanne, Apr 20, 2008
    Last edited: Apr 20, 2008
    Yesterday my husband and I went to hear a woman called Amanda Wootton speak. She is 27 years old and tested positive at the age of 19 for the gene for Familial Early Onset Alzheimer's Disease. This means she will definitely develop the disease. No question, no doubts. Her mother was diagnosed at the age of 35 and died at the age of 47. Her mother's four siblings all inherited the gene and all died before the age of 49.

    As she spoke, Amanda radiated happiness, positiveness and an enormous love of life. She will be graduating from college in three weeks as a Personal Services Worker, which is the official title here for caregivers in a nursing home. She will be caring for Alzheimer's patients. My eyes kept filling up and they are now.

    After her speech, we spoke to her. She kept hugging me. She is beautiful inside and out and I recommend that people visit her website www.alzheimersvoice.com to learn more about her.
     
  2. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,884
    Kent
    The story is inspirational Joanne and humbling too. Unfortunately there seems to be an error on the link as I`m unable to get throught to it.
    Love xx
     
  3. Tender Face

    Tender Face Account Closed

    Mar 14, 2006
    5,379
    NW England
    Reminds me of Dawkin's 'Selfish Gene' ...... seems some people who have little or no hope for themselves (of longevity at least) are gifted extra 'selfless genes' to inspire others ..

    Karen, x
     
  4. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    Thank you for the story Joanne.

    You must consider yourself so fortunate to have been able to hear her speak. Makes me feel very humble just thinking about her situation.
     
  5. Canadian Joanne

    Canadian Joanne Volunteer Moderator

    Apr 8, 2005
    16,154
    Toronto, Canada
    My mistake on link

    Amanda kept referring to choices in our lives so, as I was going by my memory, I made an error.

    It's www.alzheimersvoice.com What a silly I am! Enjoy.
     

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