Not sleeping well

Kermit1974

New member
Feb 9, 2020
2
My 67yr old mum, was diagnosed about 3yrs ago. She doesn’t sleep well at all. Maybe sleeps for couple of hours then is up and un settled. Been to GP whom said no to sleeping tablets and when I asked for any suggestions his reply was no not really!! Any advice?x
 

karaokePete

Registered User
Jul 23, 2017
5,073
N Ireland
Hello @Kermit1974 you are welcome here and I hope you find the forum to be a friendly and supportive place.

It may be worth having another chat with the GP. Depression and anxiety are common bedfellows of dementia and they can disturb sleep. If your mum's general attitude indicates that this may be an issue some meds for these conditions can be a great help with sleep. My wife suffers with these conditions as well as her dementia and a specific anti depressant has helped greatly with her sleep over these past months.

I hope you have time to take a good look around the site as it is a goldmine for information. When I first joined I read old threads for information but then found the AS Publications list and the page where a post code search can be done to check for support services in ones own area. If you are interested in these, clicking the following links will take you there

https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list

https://www.alzheimers.org.uk/find-support-near-you

You will see that there are Factsheets that will help with things like getting care needs assessments, deciding the level of care required and sorting out useful things like Wills, Power of Attorney etc., if any of that hasn't already been done. There is also a Dementia Guide in the list.

Now that you have found us I hope you will keep posting as the membership has vast collective knowledge and experience.
 

Kermit1974

New member
Feb 9, 2020
2
Hi there
Thank you for your advice..I’ll have a good nosy around on the site and have a read of the fact sheets.
 

BryanG2001

Registered User
Mar 2, 2014
103
Here are some reasons for bad sleep and some things to try, keep a note of everything you try as evidence for your Doctor..
https://www.mayoclinic.org/healthy-lifestyle/caregivers/in-depth/alzheimers/art-20047832
https://www.alz.org/alzheimers-dementia/treatments/for-sleep-changes
As karokePete mentioned there are drugs that have a side effect of assisting in sleeping but are prescribed for Depression, so keep note of any signs of depression in your Mum. 'Mind' have a list of medications that can help with sleep, though most are prescription only, some aren't.
https://www.mind.org.uk/information-support/drugs-and-treatments/sleeping-pills-and-minor-tranquillisers/sleeping-pills/
Always consider drug interactions if you decide to try any sleep aids, there are web sites that can help with this, and consider any existing medical conditions.
https://www.drugs.com/drug_interactions.html
https://www.webmd.com/interaction-checker/default.htm

If you want to know why your GP won't prescribe sleeping pills try searching the NICE website:
https://www.nice.org.uk/advice/ktt6/chapter/Evidence-context
It talks a lot about the risks of using drugs to try to control sleep problems but I found little about the damage that reduced sleep causes to the brain of the person not sleeping and any others that are woken by the actions of the person not sleeping. Perhaps they need to reconsider some of their conclusions.
 

Agzy

Registered User
Nov 16, 2016
998
Moreton, Wirral. UK.
This has been a very helpful post to read as my OH has all the sleep issues of sleeping during the day and not at night. Interesting to read that taking donepesle at evening meal rather than at bed time might help and will be trying this today and the rest of the week to see if it does, thank you.
 

Lawson58

Registered User
Aug 1, 2014
1,983
Victoria, Australia
This has been a very helpful post to read as my OH has all the sleep issues of sleeping during the day and not at night. Interesting to read that taking donepesle at evening meal rather than at bed time might help and will be trying this today and the rest of the week to see if it does, thank you.
Quite often, doctors are reluctant to prescribe sleeping pills for many patients with dementia because it may increase the risk of falls. Just a thought.
 

Agzy

Registered User
Nov 16, 2016
998
Moreton, Wirral. UK.
Quite often, doctors are reluctant to prescribe sleeping pills for many patients with dementia because it may increase the risk of falls. Just a thought.
I agree as it is worrying enough that she gets up in early hours but, being deaf I don’t hear her and a fall while confused could be catastrophic