Young People wit Dementiia - Not going well
This is the first time i have looked on the discussion forum and i am not sure if i am relieved that others are going through the same thing with young children and all the struggles of poor care provision or scared witless that it really is going to get worse! Just a general question if the support is so bad why isnt more being done to support carers and families? I want to fight all the time but should i just be going with it? Talking on behalf of my mum who is the carer it just takes so long to get anything organised and i cant quite understand how bad it will get. Already he cant do much for himself and is totally rreliant on my mum - memory id bad but he seems to hold it together for me! We saw the consultant who showed us a graph with various different competencies on it and a timeline and it looks like Dad is in the late stages of stage 2 dimensia! Would be good to hear your comments and will now become a more regular poster. BTW my dad refuses to believe he is ill - anyone else come across this?
This is the first time i have looked on the discussion forum and i am not sure if i am relieved that others are going through the same thing with young children and all the struggles of poor care provision or scared witless that it really is going to get worse! Just a general question if the support is so bad why isnt more being done to support carers and families? I want to fight all the time but should i just be going with it? Talking on behalf of my mum who is the carer it just takes so long to get anything organised and i cant quite understand how bad it will get. Already he cant do much for himself and is totally rreliant on my mum - memory id bad but he seems to hold it together for me! We saw the consultant who showed us a graph with various different competencies on it and a timeline and it looks like Dad is in the late stages of stage 2 dimensia! Would be good to hear your comments and will now become a more regular poster. BTW my dad refuses to believe he is ill - anyone else come across this?