No advice -so what happens next?

Discussion in 'Recently diagnosed and early stages of dementia' started by doobedoo, Mar 14, 2015.

  1. doobedoo

    doobedoo Registered User

    Dec 4, 2014
    16
    Lincolnshire
    This is my first post and all I can say is although I was expecting a diagnosis for my husband it's still hard to accept Yesterday we saw a consultant who diagnosed my husband with Frontal Temporal Lobe dementia. He called me in first which my husband found totally confusing. asked lots of questions and then made the diagnosis. He then called my husband in and asked more questions but didn't explain anything to him. I explained it all to o/h when we returned home. Although I was expecting it I still felt shocked and when the consultant asked if there were any questions I sat there dumb and said no. But I had loads just couldn't take it all in. What I really want to know is what happens next? Are we just left to get on with it by ourselves? Are we entitled to any help? The only thing the consultant mentioned was Wills and Power of Attorney. I just feel totally confused and alone and o/h doesn't seem bothered in the slightest about the diagnosis.
     
  2. Izzy

    Izzy Volunteer Moderator

    Aug 31, 2003
    59,580
    Female
    Dundee
    I'm so sorry to read about your husband's diagnosis and how it was handled.

    I wondered if these fact sheets would be of any help to you -

    http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=122

    http://www.alzheimers.org.uk/site/scripts/documents_info.php?documentID=167

    I was also thinking that it might be helpful for you to get introduce with the Admiral Nurses. I see you life in Lincolnshire and from what I can see in the site they do operate in that area -

    http://www.dementiauk.org/what-we-do/admiral-nurses/individual-teams-services/#Lincolnshire

    As I live in Scotland and we don't have them I have no experience of Admiral Nurses other than a very helpful response than email I sent. Lots of people on this site have spoken highly of them. Do give the a ring.

    Take care. x
     
  3. LYN T

    LYN T Registered User

    Aug 30, 2012
    6,968
    Brixham Devon
    Hi doobedoo, welcome to TP. I'm sorry that your Husband has been recently diagnosed; how ever much we expect it, when it comes it is still a shock. As for getting more info could you email your Husband's consultant with your questions?

    Please keep posting as you will get lots of help and sympathy on this Forum

    Take care

    Lyn T
     

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