1. Expert Q&A: Living well as a carer - Thurs 29 August, 3-4pm

    As a carer for a person living with dementia, the needs of the person you care for will often come before your own. You may experience a range of difficult emotions and you may not have the time to do all the things you need to do. Caring can have a big impact on both your mental and physical health, as well as your overall wellbeing.

    Angelo, our Knowledge Officer (Wellbeing) is our expert on this topic. He will be here to answer your questions on Thursday 29 August between 3-4pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.

  1. KenC

    KenC Registered User

    Mar 24, 2006
    Co Durham
    Hi everyone,
    I was just thinking the other day when we were doing a partition through the local paper, to send to Mrs Hewitt.
    Are we the only ones being denied medication or is it going to go further. I have a feeling that NICE might try to stop people with other illnesses getting the medication they need.
    If this happens the rearch companies will not like this country one little bit. Not only that but Joe public will in the end stop giving money for research.
    Not a nice thought is it, lets hope we can get the decision reversed

    Best wishes

  2. connie

    connie Registered User

    Mar 7, 2004
    Hello Ken, now you have given me something to think about.

    Must say I haven't heard anything about this, but seems quite feasible.
    Cannot think that Dementia will be the only area to be targeted. As for research and funding well, as I said, you have made me think.

    Take care now, regards
  3. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    Yes Ken, I remember writing to my MP about a decision by NICE to discontinue some drugs for Osteoporosis. I don`t know the outcome as I still get mine, but I think it was another drug that was at risk of being withdrawn.

    I`m sorry I missed your paper`s campaign. I don`t know how I missed it but had I known I would have signed it willingly.

    Sorry, Sylvia
  4. pembie

    pembie Registered User

    Mar 4, 2006
    South Wales
    Question Time 16th Nov

    Hi all,

    Did anyone watch Question Time last night? During a discussion on compensating prisoners for their "cold turkey" treatment, Robert Kilroy-Silk managed to get in a criticism of the NICE decision on Alzheimers' drugs, among others.

    It seemed to be appreciated by the audience but did not lead to any further discussion re NICE.

  5. Linda Mc

    Linda Mc Registered User

    Jul 3, 2005
    Nr Mold
    Presentation of petition!

    I have just returned from a very successful lobby and presentation of a petition to local AM's. There was a good turn out despite the rain.

    We were invited into the hall where a North Wales Regional Committee meeting was due to take place and some of us gave comments to the press. Two different local papers were there and photographers so there should be good coverage in the papers of our anger at the deplorable decision by NICE.

    Hope all the other events planned for today are successful too!:)

  6. Lynne

    Lynne Registered User

    Jun 3, 2005

    To all those who carried the flag of protest at withdrawal of anti-dementia meds. on behalf of our loved ones; you got pretty good news coverage this evening, linked with the fact that the pharmaceutical companies are going to take the issue to the High Court. Well done!
  7. Norman

    Norman Registered User

    Oct 9, 2003
    Birmingham Hades
    Quite a large piece in the Birmingham Mail tonight abot the drug companies taking NICE to court regarding the AD DRUGS.
  8. jenniferpa

    jenniferpa Volunteer Moderator

    Jun 27, 2006
    While we know they're only doing it to increase their profits, I'm pleased the drug companies are doing this - they have considerably deeper pockets than organisations such as the AS, and while I'm suprised to find myself on their side (being a bit of an anarchist) all power to them.


Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.