Sorry this is a long one...
Just thought I would share my experience of NHS and Social Services and their care/management of my 92 year old mother. Before I do, I must say that generally I find both very good, but when they get it wrong - they really get it wrong!
Mum has had Dementia for about 3 years, but somewhat atypical in that she can quite effectively 'hide' the symptoms very well when she knows she is 'in the spotlight'! This goes for Doctors visits, or any 'official' seeking to do an assessment, and she can just about keep the facad up for the time involved, usually 1/2 to 1 hr. So good, she has managed to fool many, who can't understand what my brother and I see and experience on a daily basis. She lives at home and is fiercely independent. She tends to experience hallucinations, paranoia and can become delusional coupled with extreme confusion, usually early ion the morning and around mid to late afternoon. I try to see her as much as possible, and we get around 10 calls a day each on a regular basis, and the conversations can be surreal and combative on nature, however she can also be very sweet on occasions.
I move on....
3 weeks ago we had a call as Mum had fallen on flagstones late in the day and had been rushed to hospital with a suspected broken shoulder which proved correct. When visiting her in hospital I noted that her confusion had become much worse including total confusion as to where she was + more vivid hallucinations etc. She spent much of her time walking around the ward complaining that someone had taken all her furniture as she thought she was at home. It was evident that the trauma had exacerbated he symptoms. Whether it is temporary of more permanent is still yet to be seen. After two weeks the ward were keen to see her discharged, but I was very concerned that someone in her state AND with a fractured shoulder would not cope at home, even with the intended 3 times a day re-enablement team visit suggested by the social services team, but I was overruled!
I had to take her home, but not before creating a fuss to make sure that a visit was arranged that evening (it was not going to happen before!).
Early the next morning, I had a call from Mum, very weak voice, distressed, in a lot of pain, and in bed! ...and she had locked all the doors with the keys left in the locks!
I rushed over, and found that she had managed to unlock the door, but she could not remember how - and ambulance was called and they put her on Morphine to reduce the pain, then whipped her straight back to hospital!!!!!!
I took great care to make sure that the team looking after her knew the history, her issues and the events leading up the the readmission, but was horrified to find out that each new shift seemed not to know the details that I had taken great pains to recount. That included doctors, as well as a new team when she moved wards!!! 3 times so far!
So, today I found out that the discharge team was making arrangement.... arrgh!
It is patently obvious to me that a 92 year old lady with a recently broken shoulder, who has advanced dementia cannot cope at home with a simple 3 times a day 1/2 hrly visit! - between time she could be in serious problems.
What are these guys on? YES, I am fully aware that the NHS and SServices are under huge financial pressure, but you don't discharge someone like this (unless it is to respite or community hospital) until their mobility improves.... and then do a reassessment!
I am aware from sources inside Social Services that care placements are now being routinely resisted due to the cuts, but this flies in the face of their legal responsibilities and 'duty of care'...and it's only going to get worse in my humble opinion!
Rant off!
Just thought I would share my experience of NHS and Social Services and their care/management of my 92 year old mother. Before I do, I must say that generally I find both very good, but when they get it wrong - they really get it wrong!
Mum has had Dementia for about 3 years, but somewhat atypical in that she can quite effectively 'hide' the symptoms very well when she knows she is 'in the spotlight'! This goes for Doctors visits, or any 'official' seeking to do an assessment, and she can just about keep the facad up for the time involved, usually 1/2 to 1 hr. So good, she has managed to fool many, who can't understand what my brother and I see and experience on a daily basis. She lives at home and is fiercely independent. She tends to experience hallucinations, paranoia and can become delusional coupled with extreme confusion, usually early ion the morning and around mid to late afternoon. I try to see her as much as possible, and we get around 10 calls a day each on a regular basis, and the conversations can be surreal and combative on nature, however she can also be very sweet on occasions.
I move on....
3 weeks ago we had a call as Mum had fallen on flagstones late in the day and had been rushed to hospital with a suspected broken shoulder which proved correct. When visiting her in hospital I noted that her confusion had become much worse including total confusion as to where she was + more vivid hallucinations etc. She spent much of her time walking around the ward complaining that someone had taken all her furniture as she thought she was at home. It was evident that the trauma had exacerbated he symptoms. Whether it is temporary of more permanent is still yet to be seen. After two weeks the ward were keen to see her discharged, but I was very concerned that someone in her state AND with a fractured shoulder would not cope at home, even with the intended 3 times a day re-enablement team visit suggested by the social services team, but I was overruled!
I had to take her home, but not before creating a fuss to make sure that a visit was arranged that evening (it was not going to happen before!).
Early the next morning, I had a call from Mum, very weak voice, distressed, in a lot of pain, and in bed! ...and she had locked all the doors with the keys left in the locks!
I rushed over, and found that she had managed to unlock the door, but she could not remember how - and ambulance was called and they put her on Morphine to reduce the pain, then whipped her straight back to hospital!!!!!!
I took great care to make sure that the team looking after her knew the history, her issues and the events leading up the the readmission, but was horrified to find out that each new shift seemed not to know the details that I had taken great pains to recount. That included doctors, as well as a new team when she moved wards!!! 3 times so far!
So, today I found out that the discharge team was making arrangement.... arrgh!
It is patently obvious to me that a 92 year old lady with a recently broken shoulder, who has advanced dementia cannot cope at home with a simple 3 times a day 1/2 hrly visit! - between time she could be in serious problems.
What are these guys on? YES, I am fully aware that the NHS and SServices are under huge financial pressure, but you don't discharge someone like this (unless it is to respite or community hospital) until their mobility improves.... and then do a reassessment!
I am aware from sources inside Social Services that care placements are now being routinely resisted due to the cuts, but this flies in the face of their legal responsibilities and 'duty of care'...and it's only going to get worse in my humble opinion!
Rant off!