NHS does not collect data for people with Alzheimer’s laiming CHC

Discussion in 'Dementia-related news and campaigns' started by Joe Whittaker, Sep 19, 2019.

  1. Joe Whittaker

    Joe Whittaker New member

    Sep 19, 2019
    1
    I believe that the funding application for Continuing Healthcare Funding was dismissed before we had our full assessment ( DST) Meeting.

    1. We were told before mum was discharged from hospital that she was not entitled to CHC. Mum had a diagnosis of Alzheimer’s for 5 years with psychotic episodes and continual hallucinations. This decision from the multi-disciplinary team ( MDT) that mum was not entitled to CHC was taken without meeting mum or talking to her son and his partner.
    2. When this was challenged, a full assessment was agreed- this took place 8 months later. At that DST meeting a decision was taken by the MDT ( one nurse, one social student social worker) decided against CHC funding . We discovered after this meeting that the social worker had not had sight of any of our medical and social evidence.

    In a freedom of information request to the NHS we were told they do not collect data on the number of people with a diagnosis of Alzheimer’s denied CHC funding. We believe there is discrimination again people with Alzheimer’s in this country. This must be investigated further.
     
  2. Shedrech

    Shedrech Volunteer Moderator

    Dec 15, 2012
    8,006
    Yorkshire
    a warm welcome to DTP @Joe Whittaker
    there are indeed quite a number of threads on the forums deiscussing how dofficult it is to qualify fot CHC funding

    I hope your mum is receiving the support she needs
     

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