...feel like its wrong to have a good time, that ever happen to you?
All the time, Cath. I feel guilty if I laugh at a comedy programme. I feel like I shouldn't take pleasure in anything, because why should I when my mam's got AD?
They've been for tea and now gone home - they spent four hours here and we all had a really nice time. Mam was animated and happy, and even though sometimes she was talking a little bit of nonsense, so what, she was enjoying herself. My older daughter came round so they saw her too, and it was really nice.
Trouble is, as soon as they go, I start worrying about them again because I know that things can turn on a sixpence and even though mam has been fine for several hours, when she gets home she could easily change and become morose and get upset and off they go again with them both becoming distressed.
I'm already thinking that I'll pop round tomorrow to make sure they're all right. I might try to take mam out for an hour to give dad a break.
At this rate I might as well move in with them! It's the only time I can stop worrying, when they're actually there in front of me where I can look after them.