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[Jules1704]

Hi my name is Jules and I have FTD
I was diagnosed over a year ago and I am still struggling to accept it
I have had to reduce my hours at work and get really frustrated with people because I look and speak normal they I think don’t believe me
Stupid I know
I have found since my diagnosis that there is quite a lot of ignorance around Dementia and people need educating
I am only 54 years old and in my area there is nothing in the way of support groups
The only one I have found is for the older group

 

[Canadian Joanne]

Hi Jules, I'm sorry to hear how you are struggling. I don't have any advice to offer but why don't you try calling the Alzheimer's Society Help Line? Here's the number. 0300 222 11 22

 

[Shedrech]

hello @Jules1704
I'm sorry you aren't finding the support you seek
I wonder whether this site may have something useful
http://www.raredementiasupport.org/ftd-frontotemporal-dementia/

 

[PJ]

Hi @Jules1704 how are things with you? Are you still working? I stopped working 7 months prior to my diagnosis just couldn’t cope anymore. Do you drive?