1. Expert Q&A: Living well as a carer - Thurs 29 August, 3-4pm

    As a carer for a person living with dementia, the needs of the person you care for will often come before your own. You may experience a range of difficult emotions and you may not have the time to do all the things you need to do. Caring can have a big impact on both your mental and physical health, as well as your overall wellbeing.

    Angelo, our Knowledge Officer (Wellbeing) is our expert on this topic. He will be here to answer your questions on Thursday 29 August between 3-4pm.

    You can either post questions >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll answer as many as we can on the day.

New Year - what’s ahead

Discussion in 'I care for a person with dementia' started by Simmj100, Jan 1, 2019.

  1. Simmj100

    Simmj100 New member

    Jun 22, 2018
    9
    After spending Christmas Day in the Care home with my Dad and visiting daily into the New Year it appears we have entered a new phase.
    Previously l’ve mentioned the constant sex chat this continues but now includes persistent reference to him dying. Is this another trait ?
    Dad has gradually deteriorated over the months, weight loss, oedema in his legs, speech issues, start of some throat issues, increased sleeping during the day and awake at night.
    Not sure what lm really asking but l just want some answers to this awful disease.
    Sorry :(
     
  2. karaokePete

    karaokePete Registered User

    Jul 23, 2017
    4,839
    N Ireland
    Unfortunately there aren't any answers with this condition, which, as you say, is awful.

    I find myself having to give my wife constant reassurance about the state of her health as she too talks of dying etc., and wanting a timeframe for her expected lifespan etc., etc..

    It is both sad and wearying and I empathise with how you must feel.
     
  3. Amethyst59

    Amethyst59 Registered User

    Jul 3, 2017
    5,738
    Female
    Kent
    Same here...my husband has asked about his state of health and life expectancy. He has asked about the latter since his diagnosis years ago. I’ve lied each time, and said it varies so much it cannot be estimated. I reasoned that if he had really wanted to know he could have asked the doctor or googled it, in the early stages. He is beyond that now, by a long way.
     
  4. karaokePete

    karaokePete Registered User

    Jul 23, 2017
    4,839
    N Ireland
    No lies there @Amethyst59 - lifespan does vary so much. Google will produce estimates based on statistics and statistics may be little more that irrelevant unless one fits the profile of the persons on whom the stats are based.

    Whilst she has gone beyond that stage now, my wife used to scare herself by looking on line and then coming to me in a panic because she was about to die - according to the stats. I had to reassure her while at the same time thinking that she would probably outlive me. We exist in a world of weirdness!
     
  5. Simmj100

    Simmj100 New member

    Jun 22, 2018
    9
    Thank you all, some days things just get too much.
     
  6. kindred

    kindred Registered User

    Apr 8, 2018
    2,142
    Yes, I so agree, we are in a kind of dystopia living with this disease. Warmest, Kindred.
     

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