My thoughts are that that is outrageous especially as your Dad has capacity enough to explain that this is his friend and he can talk to her. I guess they are protecting people who do not have any capacity but if both residents do then this would be completely stripping them of their rights. i don't know what the legal position is - i've seen a number of close friendships in care homes but how close I don't know! Someone will know.

 

My first thoughts entirely echo fizzie's. I'm finding it hard to believe that an organisation thinks it has the right to interfere with such a relationship simply because the two people involved are living with dementia. Of course, if there was any evidence of coercion of one person by another (if there were in this case it would surely have been mentioned) then there might have to be some intervention. but whether these two people are just good friends or decide to take things further they have the same rights as any other people. Good God! You'd think we'd travelled back in time a century or more.

 

A total lack of common sense. It's apparent with that attitude these 'carers' have not been taught the consequences of their action: to make two people lonely and unhappy.

At the closing of your Dad's and the lady's days they should be encouraged to make friends and have a happy and peaceful time.
I would ask that 'carer': "How would you like to be told which person you are permitted to have a relationship with?"

 

That's terrible - as long as they are both mindful enough to make their own decisions and neither are disadvantaged why intervene. I suppose a potential problem is if one goes downhill and is not as respectful as now.

The thought of them being seperated sounds awful. Imagine their only little ray of sunshine being lost. It does need careful oversight but nothing so dramatic. I suppose staff are worried about allegations etc.

It sounds like a good discussion with officer in charge is called for - good luck.

 

Mum.had numerous 'relationships"in the nursing home was fine with it. I did have a few problems with it.
I am surprised at their reaction. I definitely got the impression new relationships especially with residents with dementia wasnt uncommon

 

Ii believe if both parties have the cognitive ability to consent, and are not married, then it's no-one else's business.

A couple of years ago, my dad, deemed to have no cognitive ability,( which I agreed with) had a female resident fixated on him. She was early stage. He went along with her idea of their relationship, because I believe he thought she was someone from his past. The carehome called a meeting, to ask me if I was okay with this (?). What could I say! I wasn't his keeper, but at the same time I knew it was wrong, due to my dad's dementia.
The carers allowed them to share a room on occasions. The outcome wasn't good!

It really does depend on the level of cognitive understanding

 

Whilst I agree "new relationships" can be a good thing

In our experience the "new relationship" turned into a nightmare for mum and both families.

Mum took responsibility for her new male friend within one week of meeting each other, which turned into supposed marriage to each other for over 20years the next week which caused no end of problems over Christmas when they were "separated" when each went to their own families celebrations

"as they were married" he thought he should have his marriage rights one night, forced himself on mum, which mum didn't want or like, so hit him, hard, thus him needing hospital treatment.....

They were both considered early stage. Him with Alzheimer's mum with vascular dementia.

The care home did nothing to stop this relationship continuing, even though It was causing mum a lot of distress.

We moved her to a new care home where "relationships" were so closely monitored, they didn't cause distress to either party, but could be safely enjoyed.






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There's the world of difference, IMO, between a close friendship and an intimate relationship as soon as lack of capacity is part of the mix.

 

Yes, I think care homes worry about sex rearing its head, especially since relatives have been known to become extremely upset on finding out that their loved one has been found in a 'compromising position' when they have previously been deemed to lack capacity.

I have heard of a man's family being asked to move him, since he could not understand or remember that a sexual relationship with a particular resident was off limits.

 

My thoughts to this and our experience

A good care home can deal with any form of what is considered inappropriate behaviour be it sexual, shouting......

It's sadly the fact that there are very few care homes that are truely dementia friendly. I gloat - not a nice thing to do I know, but I still gloat that the care home mum is in now is almost the best place

Almost..... Nothing is perfect in dementia land is it xx




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Another way of looking at the whole issue, and it can be applied to many other areas, is whether the fact that the two people involved are living with dementia inevitably means that there are different rules that should be applied to them by people who aren't living with dementia and therefore know 'better'. Many people not living with dementia get themselves into relationships which their 'loved ones' and others deem ill-advised, misunderstand what the other person in the relationship really wants, abuse the other person mentally and physically sometimes to the point of murder, and generally make their close relatives very unhappy.

As I've said previously, where any line should be drawn is surely where coercion enters the picture and not where things becomes physical, just as in any other relationship between two people. It may be difficult to prove coercion, and such a reltionship may upset other people, become embarrassing to other people. make life complicated - all things that can happen when any relationship between any two human beings develops.

Take a situation where two people in a care home living with dementia and having no living family develop a relationship which becomes physical. Is that 'acceptable'?

I'm not sure either whether the 'capacity test' helps. People can easily disagree about capacity, which is a slippery concept at the best of times.

 

Article about this issue:

http://www.communitycare.co.uk/2011/03/18/dementia-and-sex-the-last-taboo/

One of the challenges that can cause most concern for care staff, families and friends is when a new relationship begins in a care home. This may involve one resident with dementia and one without, or two residents with differing degrees of dementia. Added to this complexity, the resident with dementia may already have a partner who does not live in the care home.

It is perhaps all too easy to assume people with dementia are not capable of forming new intimate relationships; however, as long as the person with dementia is able to make decisions about their life, then their decisions should be respected.

Matters become more complicated, however, when one or both of the residents with dementia may not have the mental capacity to consent to sexual relations.

As residents with dementia are open to abuse, it is essential to carry out a capacity assessment, in accordance with the Mental Capacity Act 2005. This will need to consider issues such as whether the resident with dementia recognises the person they are having the relationship with; whether they can express their views and wishes within the relationship, or how they will be affected by rejection.

 

This AS factsheet is worth a read. There is a section that discusses sex in care homes.

 

My mom had a lot of boyfriends on CH.

If her BF is not on her sight she finds another one.

Now that she doesn't walk it is easier to staff to check what is going on.

The CH is short staffed. And I know staff hate to clean residents after sex. (There were some gossiping and after 6 years I can ask them anything) So they work to avoid it.

On medium stage, careers used to walk them making them help with others residents, so they were monitored 24/7.

I have met some BF family. I'm usually ok with hugs and kisses if HE is not married. I am not ok with pulling/pushing/screaming, neither with dancing (without a career holding them to not fall) nor with interfering with care.

Of course if my mom had conscience of her acts I think she would still be mourning my dad.

 

It sounds as though they have a sensible thought-through policy, doesn't it?