Hi therehow long has your OH had his dementia mine has not been confirmed but its looking like Lewy Body s with Parkinson ,he is the same at night but then has REM when he dose go to bed its so hard i wish someone could tell me how long hate myself at times for asking
Hi there. Your post is so welcome and I can feel myself agreeing with what you are saying. My husband has LBD each minute can be different. We can be having a normal conversation and then he will ask me a silly question. It makes me jump. I hate the nights when he doesnt remember me but I just wait for the morning when he is himself again. All the best to you.My Partner and I have been living alongside Lewy Body dementia for 4 years now . It is such a mountain to climb with so much to learn I feel for you . It is the fluctuations that are difficult because you never know when they are coming and It's so easy to be tripped up by it all . I try to remember if we wait quietly and calmly his mind will clear . To try to focus on what he can do not what he can't . To rest when he needs to rest and be active when he can be. I sometimes think it's a real lesson in living in the moment and sometimes I think it is a kind of torture .
I hope you might be able to get some support from a local carers centre if you have one . I find you have to dig around to get the help you need. I wish you well and thinking of you .
How's things. Just thought I would ask as this disease is a lonely place. Only other carers can understand. Friends will say to me "oh he seems ok today" Ahhh they dont know that we have been up all night, he has got dressed twice during the night etc. Take careThat's the thing isn't it , it takes a while to adjust to the fluctuations . I really feel for my partner , to live in a world where nothing makes sense and you are deprived of all the usual ways of making sense must be so frightening one of the reasons my partner struggles is because he has so much difficulty with language and the cruelty of it he knows it . So sad
Hello Larker, sorry not logged on for quite a while, very sad to say my person with LBD moved to care home in June. How goes it with you ? xHow's things. Just thought I would ask as this disease is a lonely place. Only other carers can understand. Friends will say to me "oh he seems ok today" Ahhh they dont know that we have been up all night, he has got dressed twice during the night etc
I am sorry the person you care for has moved to a care home but hope this is working out for all of you. Our situation continues to deteriorate. The man who was very particular in his appearance, spent hours in front of a mirror styling his hair, checking his appearance now needs assistance with all these tasks. It is so sad seeing the person he was disappear. All the best to youHello Larker, sorry not logged on for quite a while, very sad to say my person with LBD moved to care home in June. How goes it with you ? x