New drugs for short term memory loss

Discussion in 'ARCHIVE FORUM: Support discussions' started by Loulee, Feb 11, 2007.

  1. Loulee

    Loulee Registered User

    Jan 9, 2007
    10
    Suffolk
    Hi

    Consultant Psychiatrist came to see my nan on 22 Jan and things have moved pretty quickly since then.

    She was assessed and Consultant said her memory was quite poor and would be in touch.

    My nan has now been prescribed a new drug on the market for short-term memory loss, I am not sure what they are called, she is on a 4 month trial with the Alzheimer's Treatment Service and a lady is visiting tomorrow from Alzheimers Society to issue tablets.

    Do they work - does anybody have any experience with these new drugs?

    What are your views?

    Many thanks

    Loulee:confused:
     
  2. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    68,649
    Kent
    Hi Loulee,
    Do you know thw name of this new drug?
    Sylvia
     
  3. Skye

    Skye Registered User

    Aug 29, 2006
    17,000
    SW Scotland
    Hi Loulee

    The main Ad drugs are Aricept, Exelon & Reminyl, with Ebixa for the later stages. I don't know of any others, have you looked on the main Alzheimer's Society website?

    let us know when you know the name.
     
  4. Windfall

    Windfall Registered User

    Oct 18, 2005
    12
    Hampshire
    Not been around for ages...I've been lurking but not contributing..is that ok?

    My mum's on Reminyl and I'm wondering why this was chosen and not Aricept, which seems to be, from reading this site, the most common prescription. She's in the middle of a two year trial of another treatment at the moment so nothing will be changed, I'm just curious.

    Also curious if anyone else is taking part in the trial? It's based in Swindon and kensington and is funded by Elan pharmacutical.

    Thanks
     
  5. Skye

    Skye Registered User

    Aug 29, 2006
    17,000
    SW Scotland
    Of course it's OK. If reading other people's posts answers your questions, that's great. You know you can post any time you want/need to.

    As for Reminyl, there is a factsheet on the drugs

    http://www.alzheimers.org.uk/After_diagnosis/Treatments/info_drugs.htm

    Reminyl has an added ingredient which stimulates the production of acetylcholine, but is more expensive than the other drugs, which may be why Aricept is more commonly prescribed.
     
  6. Nebiroth

    Nebiroth Registered User

    Aug 20, 2006
    3,518
    There are many reasons for the choice of a particular drug - existing medical conditions may indicate one is more suitable, the preferences of the consultant prescribing, addressing particular symptoms etc.

    For example, my Dad is being switched from Aricept to Exelon because (we are told) Exelon seems to be more effective for people with severe delusions and paranoia. I believe it;s also the recommended one for people with Lewy bodies.

    AFAIK, Aricept is the most common choice because of the three it is the one least likely to cause side-effects (with Exelon being the opposite!).

    As to whether they work, this is impossible to predict for individual people. Some people benefit greatly, some do not benefit at all. In general, the best that can be hoped for is a temporary improvement in cognition (often referred to as "lifting the mental fog"), rather than memory. This has been our experience.

    You may notice an improvement, a slowing of the decline, or nothing at all. It usually takes quite a while for any effects to become evident.

    Once you know what drug is being prescribed, you can ask the consultant about it; you can ask what it is, what it is for, what might be expected, possible side-effects, and why it was chosen. It might be helpful to write down your questions before you see the consultant again.

    Unfortunately, the doctors are often so busy that they will tell you very little - you need to ask if you want the details.
     
  7. said

    said Registered User

    Jul 4, 2006
    643
    London
    Hi Loulee

    Nada is quite right - The Alzheimer's Society does not issue tablets nor are we involved in clinical trials.

    Lots of good information on this thread from other posters about the types of drug that are usually prescribed in your Nan's situation.

    Said
     
  8. Skye

    Skye Registered User

    Aug 29, 2006
    17,000
    SW Scotland
    I'd go along with the 'lifting the mental fog'. Reminyl (plus now Ebixa) hasn't had any effect on John's memory or speech, but had a dramatic effect on his mood and confidence.

    Not sure about the 'temporary' aspect, though. John is seven years into AD, and is still remarkably well. This may be down to his variety of AD, or it could be the effect of the drug. Either way, I'm very grateful.
     
  9. Loulee

    Loulee Registered User

    Jan 9, 2007
    10
    Suffolk
    New drug for short term memory loss

    Hi all

    I have been able to find out a bit more today after visit.

    Sorry for confusion re my last post of where people visiting me are from I am finding out as I go!!!

    I saw someone from Alzheimer's Treament Service who is a Senior Community Mental Health Nurse.

    She is the person who issued my nan's tablets today - these are galantamine XL (or also called Reminyl).

    Has anyone first hand experience of someone they care for taking these long term?

    Are they effective?

    thanks

    Loulee
     
  10. Skye

    Skye Registered User

    Aug 29, 2006
    17,000
    SW Scotland
    Hi Loulee

    Yes, that's the one my husband has been on for seven years. But you have to watch out for side-effects. John has done very well on it, but it doesn't suit everyone.

    There is another thread on this subject, which you might find interesting.

    http://www.alzheimers.org.uk/TalkingPoint/discuss/showthread.php?t=5431

    Hope it works for you.

    Love,
     
  11. Nebiroth

    Nebiroth Registered User

    Aug 20, 2006
    3,518
    #11 Nebiroth, Feb 12, 2007
    Last edited: Feb 12, 2007
    They may or may not be - every person is different, so you can't predict who will benefit and who won't. You just have to try them and wait and see the result - if any.

    My Dad did very well from Aricept.

    As Skye has said, you have to watch out for the side-effects which can be unpleasant; but again not everyone has a problem. We didn't get any side-effects at all from Aricept and (so far) Dad seems to be tolerating Exelon just as well.
     

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