Dear SarahEm
This is clearly a difficult time for you and your brother. A diagnosis is hard for everyone and throws up many mixed emotions. Let me try and suggest a few practical steps. Please remember I am just trying to help, I know very little of your circumstances.
1) Can you set up something like Skype to see your mother when you call her? It would perhaps help you seeing your mum as well as talking. Very likely that works both ways.
2) Your mum not recognising her diagnosis may unfortunately be a longer term factor not just short term. Please google the condition Anosognosia. I am not saying your mum will always be this way, her reaction now may simply be a defensive one. In the current circumstances with everything else going on I suggest let this ride, do not make an issue out of it.
3) I am not sure how bad your mum’s condition is. Just remember a diagnosis can help put a name on what is happening, but the actual condition will be as it was three weeks ago before it got a name. What I am trying to say is do not let a title for an illness add to your concerns or anxieties. Yes there are steps to take but many have long waiting times unfortunately, even before Coronavirus impacted on services.
4) Let’s try and break this down into the here and now and the longer term. I suggest with the demands on your brother in his employment you will need to help your mum as much as possible. He lives with her but most stay distant. Ironically you live away but may in a strange way be closer to her. Okay here are a few suggestions.
A) You say you cannot go to see her. But can you drop things at the property such as groceries, medications, etc. Arrange to leave on the doorstep, in the shed, where ever is practical. Remember the rules on social distancing. Could you see your mother in say a garden. Please see the threads on Coronavirus for other possible ideas.
B) are there things your mother likes to do in doors which you can encourage such as reading, puzzles, TV, etc. Filling her time means she is busy and entertained, perhaps a worry off your mind.
C) Presumably the diagnosis was via a memory clinic. A few weeks ago may now seem like a different world, a life time ago, but did they advise what to do next, give you any leaflets. If so ring the contacts given and seek advice. Be minded by what you are told. No one will wish to put your mum in harm’s way. In “normal times” there would be a path to follow after diagnosis, but many here will confirm even before Coronavirus that route was not straight forward at times. Contact and discuss, it hopefully will ease some of your perfectly understandable anxiety. Consider ringing the Alzheimer’s Society contact line or that for Admiral Nurses. Get some practical support, including a chance to talk through your feelings. Have a look at the care guide on here, but just the early or relevant sections At this early stage.
D) Please understand my next points are meant with the best will in the world. We have never spoken, the circumstances are very far from ideal but I am trying to help a stranger. When a diagnosis arrives it comes with a whole range of emotions for everyone involved. For now your mum is not accepting her diagnosis and hard as it might be for you to do so, I suggest let that matter go for now. It is her way possibly of coping, which may change in the future. Now consider your reaction made worse by the fears around Coronavirus. Fear, anxiety, possibly anger about the unfairness of it all, possibly guilt over not being able to do more, etc. Please just accept these are normal reactions, hard to deal with, but they to an extent go with the territory of Dementia care. The phrase carer will start to be used by professionals for your brother and yourself. You are still your mum’s son and daughter, you just have a different role in the eyes of others as well. Dementia will progress but each journey is different. In the current circumstances please do not add to your worries by trying to project what might happen in the future. Concentrate on the here and now, practical issues, not fears and anxieties born in imagining a future as yet unknown. Let’s get through today, tomorrow, next week, etc, learning about Dementia slowly and informatively.
My response is an attempt to help a stranger, based on very limited information. I have no idea how bad your mum’s Dementia is, how near you are to her, etc. Please make use of this forum. Please most importantly recognise you have just had a major event in your life, received in more testing times than normally would be the case. You will feel off balance, upset, etc. Just take a little time to really speak to yourself. What can you practically do right now, what is next week, etc. Is there anyone beyond your brother you can talk to. If not then just come here and off load. No one will judge you. Never directly met anyone on this forum but over three years I have found everyone here is a good person. A club no one wanted to join but a membership very supportive of everyone else. Practical problems just post and an answer with good advice normally comes along fairly soon. I got advice on getting my mum through cataract surgery, not knowing how to deal with mum’s “denial” and refusal to return to the memory clinic, which filled me with guilt and anxiety over should I force the issue. My light bulb moment was understanding Anosognosia, explained to me here not by a GP or medical professional. The members of this site have walked the walk and can talk the talk. Just ask in future and guidance, advice, shared experience will amble along.
hope some of my comments helped.