New carer

[jan2009]

Today my husband has woken up feeling tired,feeling down again,he did'nt sleep to well last night,he woke me up asked me to hold him,he was full of emotions,saying sorry he did'nt want this for us now the kids are grown up with lives of there own. I just held him tight and listen,he does'nt remember only said was I laughing in my sleep he did later in his sleep. If only I had a Magic Kiss to give him as he did so many times for our two children when they were little, when they were feeling poorly or down it used to worked for them. Dads Magic Kisses we called them.

Mrs Truckman

 

[Grannie G]

It`s so sad for both of you Jan.

I`m afraid your husband will get these mood swings, they are part and parcel of the condition. It`s hard to stay upbeat with dementia hanging over you, however positive you try to be.

It is early days yet and acceptance may come in time.

We too had our plans for retirement backfire as did so many others...fewer responsibilities, more freedom, more money, less work. But fate takes a hand and we have no control over what life throws at us. It`s really tough.

Magic Kisses? If only.

 

[Countryboy]

Mrs Trucklman

Hi Mrs Truckman I think your husbands emotions, not sleeping to well is part of our illness, I have had and still having the same problems for over 9 years sorry I don’t think it will get any better it started with me I was disturbing my wife’s sleep that we decided to sleep in separate rooms 9 years ago this hasn’t helped me but my wife a good nights sleep now, I have never told anyone this possible 4 or 5 nights a week I wake up feeling sad or depressed the crazy thing is I don’t know why maybe I drink to much black coffee possibly 20 to 25 cups a day I haven’t told my wife about this and fortunately for me she won’t read this because she wouldn’t know how to use the computer sorry maybe not want you want to hear but just want to tell you this happens

 

[jan2009]

When to give that helping hand

Im also finding this website very helpful, reading so many different stories,im just taking each day at a time and hope when I go to bed each night that I have done my best and im learning along the way. What I am finding difficult at the moment in the early stages is when to lend that helping hand not to overstep the mark, just as you would when teaching your child something new.To see him sometimes looking puzzled over little things that he would have otherwise done without hesitation. His passion is photography does wonderful photos,its good gets us both out, He got a new camera yesterday to see the puzzled look on his face on the simple intructions that he's done times before, so am looking up the instuctions with him so that I can help.

Jan
mrs Truckman

 

[Lynne]

Hi Jan

It can be like treading on eggshells, trying to help without causing hurt pride or dignity, can't it.
I can tell from his post your husband is a proud man, and he must be having such an internal struggle taking it all in. And no less, but different, for you.

Is your husband getting any medication - Aricept etc - to slow down his memory loss & 'blank' moments? (Forgive me if you've already said this elsewhere)

Good luck with the camera, I haven't got to grips with a digital one yet either!

Best wishes

 

[jan2009]

hi Lynne,

No medicians at this stage waiting for spect scan,he has other medical condtions,always mention to doctors head specialists,about his memory,I think this may have been over looked over the last five years. We are finally at the right starting place memory clinic and this website.

jan

 

[donkey]

hi tony, my husband wakes up very sad and full of anxiety every day now for 3 years but he dosnt no why either. he finds going a walk helps a bit, hello mrs truckman hope you are ok and finding your way around tp we all help each other here so you will never be lonley. my dave is 54 and has ftd probably for a few years now .xxx

 

[truckman]

Ah, Aint my missus sweet.
Woke up this morning with a cracking headache but at least feeling a bit clearer in the afternoon.
Sometimes when she tells me I have already said something or for got to do something, I think she is having a little joke at my expense, Altough I no she is not.
We have just had some fun trying to open a tin of roses (she deserves it) it toog ages to peel of the tape from around the lid.
Jan said at leas she has found something that keeps me quiet lol.
The little minx

 

[Grannie G]

You sound much brighter this evening truckman. I hope you are.

 

[truckman]

Yes feel muc brighter today thanks sylvia. even whent out today I just cant quite seem to shif this headache though. the nights seem to be hardest, for me anyway.

Norman

 

[Grannie G]

How do you feel about trying Drinking chocolate before bed. It seems to work for a few others who have bad nights. It can do no harm to try.

 

[truckman]

I always find chocolate to sweet for me. I dont like sugugar in anything. I might gor some and give it a try though.
I feel realy tired yet I cannot sleep.

 

[Grannie G]

Cocoa is unsweetened and probably better too as it`ll be stronger.

 

[Bookworm]

Cocoa has no sugar in it Truckman - it is drinking chocolate without sugar....there are some lovely Fair trade & even organic ones in the S.......y shop. You boil some milk & meantime mix a teaspoon of cocoa in mug with some cold milk & then add the hot milk. Then you can (if you want) doctor it up with a couple of chopped marshmallows (they are very sweet but do not make the drink very sweet if you keep to a few) - chop with wet scissors.

Ah - snap Sylvia......

 

[jan2009]

You have had a lot to take in this week,your emotions are all over the place,thank you for my chocs im feeling a little sick now.Just remember what ever life throws at us, remember our little saying we've had for all these years together AS LONG AS WE ARE TOGETHER EVERYTHING FALLS INTO PLACE!

Jan
mrs Truckman

 

[truckman]

Jan Has just fouund some cocoa and Is kindly going to make me one. I forgot that cocoa was unsweetened.
Thanks for the tip

Norman

 

[Grannie G]

Let us know if it works.

 

[truckman]

I promise, i will. thanks Sylvia

 

[Helen33]

Hi there

Well Jan, you with your tin of Roses and I've just had a large bag of Maltesers and half a tub of ice cream. I'll not be weighing in tomorrow at the slimming club

Truckman, I hope your headache clears. Alan, my husband, has showed me he has a headache today which is very unusual for him. Did you both watch X Factor?

Love

 

[jan2009]

Hi Helen,
We did watch x factor,although I think we was doing the krypton factor trying to get into the tin chocs Im going for a bag off chocs next time much quicker

Jan