Although only recently diagnosed with Frontotemporal Dementia, this was an unnamed and misunderstood demon we have had to battle with over many years. My loving, gentle husband became someone else and I, very much a victim of this disease, just as much as he. I am told that I am no longer his wife but his carer...when did that happen? I am struggling to find people willing to talk honestly and openly with me about FTD, even at clinic. I need help because I feel so alone - not sorry for myself, but alone.