Hi,
I’m really new to this. I’m 26 soon to be 27 and my wonderful Mum of 52 has been diagnosed with young set dementia last year.
Due to a lot of (and to be honest, too many) extremely stressful things that have happened to my mother in her lifetime, I now desperately try to take away any complications from her life. I have started a power of attorney process but constantly feel underprepared in how to support her to the best of my abilities.
I feel grateful that she is still mostly herself but if she doesn’t sleep enough or worries, I can see the panic set in and it seems to make the condition worse. I try my upmost to get her to tackle these moments without so much fear and in different ways so I can help but sometimes the emotional strain can be so overwhelming…
I’m really scared that I’m going to let her down and then miss out on important life milestones…and without sounding incredibly selfish, this isn’t something I expected for either of us at the current age we are. It just feels too early and surreal.
I was curious to see if there is anyone else in this community that is a carer of someone with young onset dementia? Or even other types but to say a hey, how you doing?, share in experiences and any tips for both sides.
I’m really new to this. I’m 26 soon to be 27 and my wonderful Mum of 52 has been diagnosed with young set dementia last year.
Due to a lot of (and to be honest, too many) extremely stressful things that have happened to my mother in her lifetime, I now desperately try to take away any complications from her life. I have started a power of attorney process but constantly feel underprepared in how to support her to the best of my abilities.
I feel grateful that she is still mostly herself but if she doesn’t sleep enough or worries, I can see the panic set in and it seems to make the condition worse. I try my upmost to get her to tackle these moments without so much fear and in different ways so I can help but sometimes the emotional strain can be so overwhelming…
I’m really scared that I’m going to let her down and then miss out on important life milestones…and without sounding incredibly selfish, this isn’t something I expected for either of us at the current age we are. It just feels too early and surreal.
I was curious to see if there is anyone else in this community that is a carer of someone with young onset dementia? Or even other types but to say a hey, how you doing?, share in experiences and any tips for both sides.