unicorn said:
! I feel like knocking my head against a brick wall nearly every day, i suppose it becomes harder not easier, so i better prepare myself if that is possible!!!!!!!!!
Dear unicorn, yes, I'm afraid it does get harder, and I don't think there's any way to prepare yourself.
I find the sleepless nights the hardest to deal with, my patience wears very thin when I've been up every two hours all night.
Incontinence is also hard to come to terms with, especially at the stage wnen they're not totally incontinent, but have frequent accidents.
I found pull-up padded pants better at this stage, because men especially seem to find it difficult to cope with pads. It's worth asking if the nurse can supply them. They are available in some areas, but not others. I had to buy them for John, but they're available from any chemist -- I used Boots own brand.
It could be that you will have to take over supervising his shower, I'm afraid they just forget what to do.
You're right, it is all part of the disease, and is a normal stage that most of us have to go through at some stage. It's not easy, though, so please keep posting and we'll try to help you.
Have your read the AS factsheets? Just click the factsheet logo at the top left of the page, there are lots of them. You might find the one on incontinence helpful.
Love,