A year ago I was diagnosed with EOMD, I still find it hard to accept at times. I have been through the initial grief, but find if I think of things too deeply, I will be a blubbering mess. This is such a massive thing to digest - this huge monster that has taken over our lives. Every now and then I can unearth it and contemplate the future - but not often
One day, a few months ago, I woke up thinking 'I have no hope and no future'. I was full of absolute nothingness. I'm a very positive person and have always believed there was hope. But with this illness, where is the hope? Where is the future? I felt terrible, so empty, so alone with this awful black hole engulfing me.
Hours later, this voice came to me, Winston Churchill saying, ' Never give up - never surrender'. I quickly went out and wrote it on my white board. I was giving up, I was surrendering - to this awful disease. I had to change the way I was thinking - and of course there is hope. I wrote up another board with all my hopes on - I hope to see my son and his partner get married, my first granddaughter to go to school etc etc. There's always hope, we just have to look at things a different way.
Yes, this illness is very depressing and debilitating. It's not easy to pull yourself up at times, to climb out of the black hole - I know I've been there many times and probably so has everyone else here.
Be strong, never give up, never surrender - God Bless everyone xx
One day, a few months ago, I woke up thinking 'I have no hope and no future'. I was full of absolute nothingness. I'm a very positive person and have always believed there was hope. But with this illness, where is the hope? Where is the future? I felt terrible, so empty, so alone with this awful black hole engulfing me.
Hours later, this voice came to me, Winston Churchill saying, ' Never give up - never surrender'. I quickly went out and wrote it on my white board. I was giving up, I was surrendering - to this awful disease. I had to change the way I was thinking - and of course there is hope. I wrote up another board with all my hopes on - I hope to see my son and his partner get married, my first granddaughter to go to school etc etc. There's always hope, we just have to look at things a different way.
Yes, this illness is very depressing and debilitating. It's not easy to pull yourself up at times, to climb out of the black hole - I know I've been there many times and probably so has everyone else here.
Be strong, never give up, never surrender - God Bless everyone xx