i have a trapped nerve in my back by something and with arthritis as well so also got a chronic pain condition. im on oramorph to take the edge off. my son does a lot of the jobs i cant do or my dil will come over and hoover if im bad. my daughter will do things if shes asked like she does his meds and takes him to the doctor as im basically housebound. i do have a mobility scooter which i go out once a week preferably on my own to have a break. my husband also has COPD so cant do anything much. i have a dustpan and brush with a long handle which helps. i have a light hoover and its anything that is easier for me. i do one job a day and have plenty of sit down days.
Need to unload/talk
- Thread starter Unsure2021
- Start date
I have bone spurs in my spine that catch on my nerves at times so I know where you are coming from with the trapped nerve pain,
I have had an urgent appointment for orthotics put through due to the lastest arthritis flaw, to see if there is any other aids/splints/braces to help.
So rant time...
OH has had his diabetes/BP review, I sent email with bullet points, I went into appointment with him and she did NOT want to know, he had 3 dizzy spells while in the office, she had to repeat herself multiple times because he didn't understand or didn't remember what had been said.
He brought up himself problems with pain, stiffness, difficulty moving with one of his legs,
Took blood and going to ring with results, OH made her write down when she's going to ring and even what time, so he doesn't forget.
she said...'if it keeps happening, come back down'
I translate to...' not my problem '
OH translate to.....' I'm not concerned so nothing is wrong'
Frustrating!
New observations:-
Last night I noticed alot of blinking and eye squinting, when I asked OH he said it's involuntary and been happening for a week.
Today I noticed alot of raised eyebrows and eye flicking upwards, lots of re-arranging of glasses.
I have managed to film a little of the eyebrows and eye flicking around ... just need to find someone to show now.
I have had an urgent appointment for orthotics put through due to the lastest arthritis flaw, to see if there is any other aids/splints/braces to help.
So rant time...
OH has had his diabetes/BP review, I sent email with bullet points, I went into appointment with him and she did NOT want to know, he had 3 dizzy spells while in the office, she had to repeat herself multiple times because he didn't understand or didn't remember what had been said.
He brought up himself problems with pain, stiffness, difficulty moving with one of his legs,
Took blood and going to ring with results, OH made her write down when she's going to ring and even what time, so he doesn't forget.
she said...'if it keeps happening, come back down'
I translate to...' not my problem '
OH translate to.....' I'm not concerned so nothing is wrong'
Frustrating!
New observations:-
Last night I noticed alot of blinking and eye squinting, when I asked OH he said it's involuntary and been happening for a week.
Today I noticed alot of raised eyebrows and eye flicking upwards, lots of re-arranging of glasses.
I have managed to film a little of the eyebrows and eye flicking around ... just need to find someone to show now.
Managed to Show video to optician while OH was at his sister's ( eventually after getting over covid) and he sent appointment out for an eyetest.
Nystagmus,Blepharospasm, dystonia, neurological all mentioned. has now been referred to an ophthalmologist for further investigation ( I think I've spelt and got everything right).
He's had blood tests results back and everything is great, they have even said his diabetes is in remission ( no idea how, since he eats ALOT of sweet stuff).
Only thing that came out of his review was his BP still a tiny bit high,
Day before he went to his sister's I tested positive for covid, she still took him as they have had it themselves recently, but he has insisted on coming back every day for a couple of hrs to 'look after me' and his sister couldn't persuade him otherwise.. even though I didn't really get the break I wanted I was grateful for what I did get as those first 3 days with covid knocked me for 6 and energy levels are very low. I don't think I would have managed if he had been at home.
New observations:-
Has said this house doesn't feel like home ( lived here 17yrs) and he keeps saying things like 'having it delivered to yours' or 'when I come to yours'
Nystagmus,Blepharospasm, dystonia, neurological all mentioned. has now been referred to an ophthalmologist for further investigation ( I think I've spelt and got everything right).
He's had blood tests results back and everything is great, they have even said his diabetes is in remission ( no idea how, since he eats ALOT of sweet stuff).
Only thing that came out of his review was his BP still a tiny bit high,
Day before he went to his sister's I tested positive for covid, she still took him as they have had it themselves recently, but he has insisted on coming back every day for a couple of hrs to 'look after me' and his sister couldn't persuade him otherwise.. even though I didn't really get the break I wanted I was grateful for what I did get as those first 3 days with covid knocked me for 6 and energy levels are very low. I don't think I would have managed if he had been at home.
New observations:-
Has said this house doesn't feel like home ( lived here 17yrs) and he keeps saying things like 'having it delivered to yours' or 'when I come to yours'
Well I find myself facing something I hadn't really given much thought about.
OH and I at bedtime last night as we do sometimes, were having a little bit of a laugh.
I told him to keep his hands to himself as he'd had his wicked way with me the night before.
he said "did I?"
He has absolutely no memory of the adult intimacy we had the night before.
i guess I hadn't really thought about him forgetting having intimacy, I thought maybe he would lose interest as he has with other stuff,but actually forgetting....
I Have no idea how long this has been happening but it does explain alot of remarks I get around sex,..."it's been months, I don't want to touch him anymore" ect . It looks like he's just not remembering.
It's bringing up all sorts of questions now in my head including including what other stuff I have missed noticing.
OH and I at bedtime last night as we do sometimes, were having a little bit of a laugh.
I told him to keep his hands to himself as he'd had his wicked way with me the night before.
he said "did I?"
He has absolutely no memory of the adult intimacy we had the night before.
i guess I hadn't really thought about him forgetting having intimacy, I thought maybe he would lose interest as he has with other stuff,but actually forgetting....
I Have no idea how long this has been happening but it does explain alot of remarks I get around sex,..."it's been months, I don't want to touch him anymore" ect . It looks like he's just not remembering.
It's bringing up all sorts of questions now in my head including including what other stuff I have missed noticing.
If you can possibly try not to dwell on this but live from day to day with what each day brings @Unsure2021 it will make life easier for you.
Living in the moment will save a lot of heart and soul searching and is a big adaptation of the way we usually live our lives but if you can do it, it helps.
Is OH starting with incontinence?
I don't know what is classed as incontinence, how it starts.
For about 6 months OH has thought he'd finished when going for a wee, but he'd have dribbles when everything is away.
Then in the last month he has had a small handful of accidents with no.2's.
Not quite making it to the toilet in time, passing wind and having to run to the toilet because it wasn't just wind.
He just laughs it off, makes a joke out of it, but tells the whole household, like it's normal.
I would be mortified if it was me but he brings it up like he's talking about the weather.
I don't know what is classed as incontinence, how it starts.
For about 6 months OH has thought he'd finished when going for a wee, but he'd have dribbles when everything is away.
Then in the last month he has had a small handful of accidents with no.2's.
Not quite making it to the toilet in time, passing wind and having to run to the toilet because it wasn't just wind.
He just laughs it off, makes a joke out of it, but tells the whole household, like it's normal.
I would be mortified if it was me but he brings it up like he's talking about the weather.
my dribbles as he calls it for the last few months. he misses the toilet as well. you can use puppy pads around the base but he would object if others are here so i got some pedestal mats so i can lift them and wash them as the flooring is getting a bit rubbed. he could be a bit loose and have accidents
