1. Expert Q&A: Benefits - Weds 23 October, 3-4pm

    Our next expert Q&A will be on the topic of benefits. It will be hosted by Lauren from our Knowledge Services team. She'll be answering your questions on Wednesday 23 October between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

  1. dedicated doe

    dedicated doe Registered User

    Aug 24, 2007
    47
    wirral merseyside
    HI Again,sorry but i need to talk,Dave was taken ill at the day centre today,the staff noticed his speech was quite slurred and he went more shakey than he usually is,anyway he was taken to hospital and has had the routine tests bloods xray etc and are now waiting for the brain scan which i hope will be carried out tonight,the doctor is not sure if its another bleed or a clot (Dave has vas dementia ) i am so worried about him he told me he is so fed up with it all,the voices in his head and the dark shadows i wish i could take it all away for him,i have not long got back home so its on with the coffee as i am sure i will not sleep much tonight as the saying goes tomorrow is another day. Thanks for the talk god bless Doe.
     
  2. sue38

    sue38 Registered User

    Mar 6, 2007
    10,856
    Wigan, Lancs
    Doe,

    Sorry to hear about Dave. Hope tomorrow brings better news.
     
  3. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,594
    Kent
    Oh dear Doe, I`m so sorry to hear about Dave.

    It must be awful for him, to be so aware of all that`s going wrong and I`m not surprised he is heartily sick and tired of it all. I hope that now he`s in hospital, something will be done to help his symptoms.

    Please keep in touch and let us know how he is.

    Love xx
     
  4. jackie1

    jackie1 Registered User

    Jun 6, 2007
    238
    Cheshire
    Dear Doe,

    I am so sorry that you are having such a worrying time.

    Take care.

    Jackie
    xx
     
  5. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    Dear Doe, this is so hard for you both.

    Do hope you hear some good' news soon. Thank you for sharing, sending you my very best wishes.

    Love n'hugs,
     
  6. dedicated doe

    dedicated doe Registered User

    Aug 24, 2007
    47
    wirral merseyside
    Dave still in hospital

    Hi again,thanks for the messages,Dave is still in hospital and has been transfered to yet another ward ( 3rd one ) he had a brain scan and the doctor said he will discuss it with us on Monday along with his medication,what i have found upsetting is Dave is now getting agitated with worry saying WHAT IF THEY SAY I HAVE NOT GOT THE DEMENTIA WHY AM I WASTING THEIR TIME what do i say to reasure him,he was diagnosed with VAS DEM last year and when he has been lucid we have talked about what will happen in the future and he knows he has total love and caring from myself and the children plus support from the professionals,i am at a loss at what else to say to him i have spoken to the nurses on the ward but they will not tell me anything over the phone (I have not been able to see Dave since yesterday because of the family situation )i hope to see him tomorrow but i am getting into a panic over what the outcome will be on Monday,i dont know if i can keep a smile on my face for the sake of the children Anyway thankyou.God Bless Doe.:(
     
  7. Nell

    Nell Registered User

    Aug 9, 2005
    1,170
    Australia


    Dear Doe,

    I'm sure your children can cope with having their Mum very upset. It is natural for you to be upset over this awful business with your hubby. Let yourchildren help and support you - I'm sure they will want to.

    You and David are going through a terribly hard time, and I fel for you so much.

    In my opinion, one of the WORST things about this dreadful disease is that sufferers are so AWARE that something is wrong. They may not accept the diagnosis, but many know only too well that they are no longer as they once were. This is ghastly for them, and heart breaking for us as Carers.

    I'm sending you my very best wishes for strength to cope and also some

    {{{BIG HUGS}}}
     
  8. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,594
    Kent
    Dear Doe.
    My husband says this too. There was an item on the news about benefit scroungers and he became very worried about his AA in case they thought he was pretending. And when he was offered a place at a day centre he said it would be better if someone who really needs it has it.
    Please don`t feel the need to pretend to your children. If it`s bad news they will be as upset as you are. But let`s hope for the best with fingers crossed that whatever caused his recent attack is treatable.
    Love xx
     
  9. dedicated doe

    dedicated doe Registered User

    Aug 24, 2007
    47
    wirral merseyside
    RE.Your kind messages

    HI,Thankyou for your kind messages,regarding my children its hard for me to be totally honest with them and explain in a way they will understand (my two boys have Downs ) i just tell them their Dad is not well and try to change the subject when he is having an off day,my daughter understands but i still hide things from her this i feel is the best. I went to visit Dave today and got such a shock at the hospital,i found him at the front entrance wandering about he did not know why he was there,luckily a friend had passed and got talking to him,i took him back to the ward and explained to the nurse what had happened,she said all the staff would be told of Daves wandering,i know how busy the nurses and wards are but it is still a worry i hope he is home soon,sometime next week fingers crossed.God Bless Doe.
     
  10. christine_batch

    christine_batch Registered User

    Jul 31, 2007
    3,388
    Buckinghamshire
    Dear Doe,
    I do hope that Dave is back home with you and the children soon.
    I admire what you are doing but you have so much else with children as well.
    Do you have any help at all? If not you really do need it.

    I wish you and your family all the best.
    Christine
     
  11. dedicated doe

    dedicated doe Registered User

    Aug 24, 2007
    47
    wirral merseyside
    Thanks Christine

    HI Again,thanks for the message,my eldest boy has social services help as i am having a few problems with him at the moment but his brother is at home with me all the time at the moment,he has finished his three years at college but as he wants to get a job its been very difficult and a lot of running round,i hope he can find something in the months to come. I also hope Dave will be home next week he is just waiting on the consultant over his scan i do miss him terribly its not the same as when he goes into respite.Anyway thanks again.God Bless Doe.
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.