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Need advice ASAP - meeting tomorrow - kicking my gran out! CHC ass stopped?

Elle3

Registered User
Jun 30, 2016
642
Hi, @loolabell I found myself in a similar situation to you with my dad. He was self funding and had only been in his care home for 2 weeks when I was contacted by the Manager and told that they couldn't cope with him, due to his behaviour and they wanted him out.

We however, already had a SW on board and she proved to be invaluable, she mediated our meetings, organised for the Senior Mental Health team to look at meds and got the home to agree to keep dad until I could find a more suitable care home for him. The only thing I did have to agree to though was paying for a one to one nurse to be with dad for 8 hours a day until he could be moved.

She provided me with a list of care homes that specialised in looking after challenging dementia patients and I went to visit them all. I made sure I was completely honest with them with regards to my dads needs and behaviour and I could tell straight away which homes would be able to cope and which kind of looked at me aghast at what my dad had been up to. I did though find a perfect care home and I knew they would cope very well with my dad. It took me 3 weeks from being told he had to leave to him moving into his new care home.

Now, regarding the CHC. The SW and first care home manager both thought dad might be eligible for CHC and when I mentioned this to his new care home they agreed and even gave me some paperwork regarding the assessments to look at. The SW and the new care home agreed that dad needed to have a settling in period in the new care home before the initial assessment would take place, so they could gather enough evidence to support our claim. This was for 4 weeks but the SW agreed to fund the FNC element for that period and negotiated the care home fee for me at the SS rate and not the private funded rate.

When the initial assessment took place he was deemed eligible and was referred to the CHC team for full assessment. This had to be carried out within a certain period of time after the referral and it was actually done 2 weeks after the first assessment, present was myself (and my dad but he didn't need to be), the SW, and care home nurse and two people from the CHC. My dad was awarded full funding and he kept that full funding until he unfortunately died suddenly (not dementia related) back in March last year.

I know a lot of people have been through the CHC process and have been turned down and a lot seem to have had far more medical conditions than my dad. But I think the reason my dad was eligible was due to the unpredictability of his behaviour and the fact that he was physically quite fit and mobile, the Dementia had robbed him of his communication and cognitive skills, so he had no understanding of danger, pain or that people where trying to help him which caused him to be aggressive, verbally and physically to staff and other patients. Because of this he scored Severe for Cognition and Behaviour and High for Communication. It also helped that the care home was fully behind me and kept excellent records, they kept what they called ABC charts and these were provided to the CHC as evidence, plus I provided a lot of background information as to how dad's dementia had deteriorated and why he'd had to go into a care home.

So what I'm trying to say, if you think you have a chance of being awarded CHC funding, get a SW involved and make sure the new care home you choose is willing to support you and gather enough evidence for your claim. You can also keep records too so you can work together.
 

MaNaAk

Registered User
Jun 19, 2016
1,639
Essex
Thanks, it looks like we have found one, and they currently have availablility - If she does waulify for funding, I just cant see her getting any better, shes becomer weaker and weaker, has lost so much weight, and now refusing to eat, be sociable - agitated all the time....its terribly sad. It doesn't help that the GP doesn't even really know her.....
Good luck with this Loolabell.

I couldn't stop reading your post and I would have thought that 48 hours isn't enough!

MaNaAk

PS: Dad was Malay and he became aggressive just after last Xmas. The home put him on memantine which calmed him down but he was also deaf and forever playing Hunt The Hearing Aids.
 

loolabell

Registered User
Jan 13, 2020
10
Personal experience.
The bar is set high.

Wife,immobile/hoisted, non verbalising, doubly incontinent with catheter, purred food, contracted wrists, in foetal position did not get CHC

Admitted to A&E with AKI, consultant said 'sorry your wife has much life left' , registrar agreed to fast track CHC

After a couple of weeks with no progress, I went into extreme overdrive (now realised fuelled by anger)
Result was fast track by return telex to GP which I later got backdated to the date of the witnessed consultant's statement.

There was a 3 month review, my wife died a few days short of this,
So sorry to hear this, it seems that we are not alone in the fight to get what our families rightly deserve.

So we had our meeting today. Fortunately we weren't given notice, and I assured them that I would be looking but with the help of Social Services. They didn't like that for some reason. Were pushing me to go and find our home, and they would assess and decide. At this point, I let her have it! I told her that I felt that they should have never offered a space, and then dump her when she was not financially viable to keep! I mentioned that she was working for a private business, out to make money etc etc...I used kinder words, but told her how I felt. It doesn't change the position I'm in, but felt she needed to know. She started to cry and told her that I had upset her.(!!)

The CHC was passed to me, they've restarted it! So its now from 9/1/2020 and not 19/12/2019, I guess if they believe that she will be successful in funding, they want to at least keep last months fees! They told me the reason that they did was her rapidly deteriating condition meant that they were not able to do the second level of assessment, and now that they have re done it, she has 5 x A's and this will be stronger for the future....not convinced on that bit either.

So Social Services will allow the CHC to run its course (not fastracked either) and then they will assist us in finding suitable place. Apparently this takes around 2 weeks....Honestly, I will be surprised if she is with us by then. I secretly hope that she isn't, she is having a terrible quality of life, she keeps saying that she just wants to die, and if she knew that she had to be moved, the stress and upheaval of it all, would not be justified, given the short time that I believe she has.

I'll update as and when there is any news as such.

Thank you all for your assistance and advice. x
 

Normaleila

Registered User
Jun 4, 2016
731
If your grandmother has so little time left I don't think social services should be involved at this stage - it will probably cause delays. The priority is to find suitable care.
 

Jessbow

Registered User
Mar 1, 2013
2,987
West Hertfordshire
At this point, I let her have it! I told her that I felt that they should have never offered a space, and then dump her when she was not financially viable to keep!

Do you think that's what its about then?
I read it as they want her moved as her mental state has deteriorated and she is screaming and upsetting others
 

loolabell

Registered User
Jan 13, 2020
10
At this point, I let her have it! I told her that I felt that they should have never offered a space, and then dump her when she was not financially viable to keep!

Do you think that's what its about then?
I read it as they want her moved as her mental state has deteriorated and she is screaming and upsetting others

Lets just say at the meeting, the Senior nurse revealed to me after on a one to one in the corridor, that he would be more than happy to keep her!