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My Story and new Petition on the No.10 Downing Street website.

Discussion in 'Dementia-related news and campaigns' started by Stephen Johnson, Mar 15, 2007.

  1. Hi,

    I am new to this message board and after having a discussion with Andrew Ketteringham (Director of External Affairs), the Alzheimer's Society have kindly put a link on this Site to a Petition I started on the No.10 Website.

    http://www.alzheimers.org.uk/News_and_campaigns/Campaigning/accesstocontinuingcare.htm

    I thought I would reinforce the above link and tell you my story.

    I look after my 78 year old mother who has chronic arthritis, emphysema, epilepsy, history of 3 strokes, 1 heart attack and is now becoming slightly dementured.

    On top of that, I have a Brother (aged 53) who is self funding in a Private Nursing Home. Rod had a massive Brain Haemorrhage on 24th May, 2005. As a result of this, he has been left paralysed, doubly incontinent, peg tube in his stomach for fluids, constant pain due to Thalamic Pain Syndrome, suicidal, epileptic, constant skin irritation and is on over 15 medications a day. He has also had many infections including MRSA (list not exhaustive). He has been refused Fully Funded NHS Continuing Care because Central and Eastern Cheshire Primary Care Trust seem to think that his main need is a social need and not a nursing need. What absolute rubbish.

    I am now fighting the NHS to get the funding he should be getting under the law of the land. Unfortunately the battle is frought with endless and deliberate delay, procrastination, prevarication and sheer bloody-minded intransigence on behalf of the NHS.

    The Website can be seen at: www.continuingcarecampaign.info

    The Petition can be seen at: http://petitions.pm.gov.uk/Continuing-Care/

    I would be more than grateful if you would have a look at the website and sign up to the petition.

    The Core Principles of the NHS can be summed up as follows: To provide care which is free at the point of need, meets the needs of everyone and is based on a patient's clinical need not their ability to pay.

    Tony Blair said at the Labour Party Conference in 1997 that he didn't want his children brought up in a country where pensioners had to sell their homes to pay for long term care.

    Since then approx 700,000 homes have been sold to pay for care.

    This applies to sick people of all ages. These people have paid taxes and national insurance all their lives, then suddenly they get taxed again when they become ill by funding their own long term care. What an absolute disgrace!!!!!

    If you have an illness or disability you are entitled to Fully Funded NHS Continuing Care under the National Health Service Act 1946/48 and the 'Coughlan' Judgement in the Court of Appeal 1999.

    Kind Regards,

    Stephen (Johnson).
     
  2. youngest_son

    youngest_son Registered User

    Oct 15, 2005
    21
    Yorkshire
    Good luck with your campaign, I have signed the petition.
     
  3. Cate

    Cate Registered User

    Jul 2, 2006
    1,370
    Newport, Gwent
    Wishing you every success. I have signed the petition. We are currently in the process of selling mums home to pay for her NH care.
    Cate
     
  4. Grannie G

    Grannie G Volunteer Moderator

    Apr 3, 2006
    69,896
    Kent
    Dear Stephen,
    Good luck with your petition. I have signed this morning.
     
  5. Grommit

    Grommit Registered User

    Apr 26, 2006
    2,127
    Doncaster
    Good Luck. Signed this morning
     
  6. soulsmilin

    soulsmilin Registered User

    Feb 13, 2007
    43
    Tyne and wear
    thanks, signed up, good luck and best wishes
    soulsmilin
     
  7. UPDATE ON PETITION.

    DAY 26

    First of all, a very big thank you to all who have signed the Petition.

    In the popularity stakes, we rank 186 out of 5911 petitions with 985 signatures. Don’t forget to make sure your name is there and pass the link on to all your family, friends and work mates. http://petitions.pm.gov.uk/Continuing-Care/ Closing date 20th August, 2007.

    Kind Regards,

    Stephen (Johnson).
     
  8. twink

    twink Registered User

    Oct 28, 2005
    265
    Cambridgeshire UK
    Have just signed. Good luck.

    Sue
     
  9. connie

    connie Registered User

    Mar 7, 2004
    9,519
    Frinton-on-Sea
    This ones a must.
     
  10. jakky

    jakky Registered User

    Jan 30, 2006
    147
    Staffs
    all the best, signed this one......

    take care

    jakky
     
  11. cynron

    cynron Registered User

    Sep 26, 2005
    429
    east sussex
    OK I HAVE SIGNED THE PETITION

    Cynron x x
     
  12. alfjess

    alfjess Registered User

    Jul 10, 2006
    1,213
    south lanarkshire
    Hi
    signed the petition

    Alfjess
     
  13. cris

    cris Registered User

    Aug 23, 2006
    326
    Chelmsford
    I have signed and passed to friends and relatives. Not wishing to take political sides, people have to realise that politicians always talk a good story. They are liars to their teeth. Politicians are nothing special and should not be put on a peddle stool. A good political story is released many many times. ie I will give 6 million pounds to the nhs in april 2010. (january speech) i will give 6 million pounds to the nhs in april 2010. (august speech) i will give 6 million pounds to the nhs in april 2010. (december speech) Every time people think "oh good another 6 million". Come april 2010 it quitely passes and 2 million might be given.
    Why in the budget yesterday was tax reduced applying in 2008. They are like utility companies reducing price of gas/electric in march or april AFTER the cold weather should have finished. Politicians promise everything, and deliver nothing because the publics memory fails and forgets the promises.
    Who started me off. :eek: :D sorry
    cris
     
  14. Dear Cris,

    That was a good little rant. I know very well the frustration of politicians and unfortunately for us, they are all the same. Full of idle promises and downright lies.

    Thanks for signing the petition and passing it on.

    Kind Regards,

    Stephen (Johnson).
     
  15. UPDATE ON PETITION AND SOME NEWS STORIES.

    DAY 36

    First of all, a very big thank you to all who have signed the Petition.

    In the popularity stakes, we rank 175 out of 6425 petitions with 1,244 signatures. Don’t forget to make sure your name is there and pass the link on to all your family, friends and work mates. http://petitions.pm.gov.uk/Continuing-Care/ Closing date 20th August, 2007.

    LATEST NEWS STORIES:

    NORTHWICH GUARDIAN 2nd March, 2007.

    'BLAIR IS ASKED TO SUPPORT ELDERLY'
    By Staff reporter
    http://www.northwichguardian.co.uk/...0.0.blair_is_asked_to_support_elderly.php?s=s


    NORTHWICH CHRONICLE 6th March, 2007.

    'STROKE LEFT ROD PARALYSED DOWN ONE SIDE.... BUT HE IS NOT ELIGIBLE FOR NHS CARE'
    By Dave Goodban, Northwich Chronicle
    http://iccheshireonline.icnetwork.c...objectid=18719654&siteid=50020-name_page.html


    NORTHWICH GUARDIAN 14th March, 2007. Page 2.

    ‘HUNDREDS BACK FIGHT TO HELP SICK AND ELDERLY’

    Hundreds of people have already signed a petition calling on the Prime Ministerto fund long-term care for the sick and elderly.
    Acton Bridge resident Stephen Johnson, of strawberry Lane, started the campaignon the Government’s number 10 website and within its first six days more than 200 people signed up.
    More than 700 had backed the campaign at the time of going to press.
    Rod, whose story has been followed by the Guardian, is now being cared for at Redwalls Nursing Home in Northwich but is funding his own care because authorities refuse to pay.
    Under the current system the NHS will pay for long-term care if it is deemed medically necessary but if it is considered social care the costs are means tested.
    You can also keep up with the latest developments on the Guardian’s website and add your own comments.
    To sign the petition, see http://petitions.pm.gov.uk/Continuing-Care/


    NORTHWICH GUARDIAN 14th March, 2007. Page 7.

    ‘CAMPAIGN FOR CARE INSPIRES READERS’

    A man’s campaign to ensure that long term care of the elderly and sick is funded properly was the most read story on the Guardian’s website this week.
    Stephen Johnson from Acton Bridge, is annoyed his brother Rod has to pay for his own treatment after suffering a massive stroke.
    The top five stories were:

    1. Blair is asked to support elderly.
    2. Plane hunts for thief.
    3. Burr defiant after loss.
    4. The final must go on.
    5. Team vows to target the vandals and dealers.


    Kind Regards,

    Stephen (Johnson).
     
  16. dolly gee

    dolly gee Registered User

    Mar 9, 2007
    47
    merseyside
    connie what a loverly thourght thank you doll g
     
  17. Norman

    Norman Registered User

    Oct 9, 2003
    4,348
    Birmingham Hades
    Stephen
    I have signe the petition and I wish you every success.
    Those core words? Are they not the words of Nye Bevain?
    Norman
     
  18. Dear Norman,

    The Core Principles of the NHS can be summed up as follows: To provide care which is free at the point of need, meets the needs of everyone and is based on a patient's clinical need not their ability to pay.

    Indeed they are the words of Aneurin Bevan and are the core principles of the NHS. The law hasn't changed since the National Health Service Act was passed in 1948. Unfortunately the government seem to ignore the law.

    Many thanks you and everyone else who has signed the petition.

    Kind Regards,

    Stephen (johnson).
     
  19. 6 WEEKS INTO THE PETITION.

    First of all, a very big thank you to all who have signed the Petition.

    At 11.00am today we rank number 156 out of 6,900 petitions in the popularity stakes with 1,415 signatures. Let's keep going. It is getting tougher as we move up the ladder. Numbers and friends of the cause are growing.

    Don't forget to sign up and get your friends, family and colleagues to sign as well. All the family can do it as long as they have different email addresses.

    http://petitions.pm.gov.uk/Continuing-Care/ Closing date 20th August, 2007.

    Kind Regards,

    Stephen (Johnson).
     
  20. ALMOST 8 WEEKS INTO THE PETITION.

    First of all, a very big thank you to all who have signed the Petition.

    At 8.15am today we rank number 151 out of 7,125 petitions in the popularity stakes with 1,534 signatures. Let's keep going. It is getting tougher as we move up the ladder. Numbers and friends of the cause are growing.

    Don't forget to sign up and get your friends, family and colleagues to sign as well. All the family can do it as long as they have different email addresses.

    http://petitions.pm.gov.uk/Continuing-Care/ Closing date 20th August, 2007.

    Kind Regards,

    Stephen (Johnson).
     
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