Hi this is the 1st time I have been on this sight. I took my mum out of a care home in November to live with me. She is 85 and now has very severe dementia, dr thinks it Lewy bodies which is horrible as she has horrific hallucinations. My biggest problem is she lies all day with her mouth wide open and makes this horrible noise like a wounded animal. She makes this noise all day and all night if her mouth is wide open but if her mouth is closed and her face soft she sleeps well and makes no noise. Her CPN says she has never seen behaviour like it before and I wondered if anyone else has. Her mouth is rigid when open and her face goes completely contorted. We are finding it so hard to deal with as it is very loud all night.