Hi
I'm so pleased to have found this forum!
Sadly, my Mum was diagnosed with Alzheimers in April, she's only 55. This has been devastating for all of us (myself, mum and dad)
There's only myself and Dad to deal with it (apart from friends) and Dad doesn't want to worry me as he reckons I have my own family to worry about! He doesn't seem to understand that him hiding things makes me worry more.
My question is this, Mum has been getting Rivastigmine for a while and is now on the maximum dosage that she's allowed. Sadly, we don't think that it's made a difference (if any). The nurse has told Dad that this is all she can get. I wondered if anyone is aware of other drugs that they could try instead of this one which may help? As far as I can see there are a few drugs that are available in the early stages of alzheimers, is it not possible for them to try other drugs or is it standard practise to only try one?
I'm quite happy to pay for drugs that could help, anything, to attempt to keep this dreadful disease at bay, even for a little while.
It's so awful to see Mum change the way that she has, she's lost confidence, got quieter and just isn't the way she used to be. I know that I have to accept that this will only get worse, but it's so hard. I'm 34 and I feel cheated, my Mum should be around for many years to come. I wanted her to see her granddaughter grow up. I feel I'm in some way mourning my Mum and she's still here.
Any advice would be most appreciated.
Thank you!
I'm so pleased to have found this forum!
Sadly, my Mum was diagnosed with Alzheimers in April, she's only 55. This has been devastating for all of us (myself, mum and dad)
There's only myself and Dad to deal with it (apart from friends) and Dad doesn't want to worry me as he reckons I have my own family to worry about! He doesn't seem to understand that him hiding things makes me worry more.
My question is this, Mum has been getting Rivastigmine for a while and is now on the maximum dosage that she's allowed. Sadly, we don't think that it's made a difference (if any). The nurse has told Dad that this is all she can get. I wondered if anyone is aware of other drugs that they could try instead of this one which may help? As far as I can see there are a few drugs that are available in the early stages of alzheimers, is it not possible for them to try other drugs or is it standard practise to only try one?
I'm quite happy to pay for drugs that could help, anything, to attempt to keep this dreadful disease at bay, even for a little while.
It's so awful to see Mum change the way that she has, she's lost confidence, got quieter and just isn't the way she used to be. I know that I have to accept that this will only get worse, but it's so hard. I'm 34 and I feel cheated, my Mum should be around for many years to come. I wanted her to see her granddaughter grow up. I feel I'm in some way mourning my Mum and she's still here.
Any advice would be most appreciated.
Thank you!