I haven't been on for a while. My mum has been in a nursing home since November after having had a very nasty infection. I didn't think she would make Christmas. She has spent most of the time in bed and they got her out into a chair every now and then. She has been quite bright in recent months and has used my name and seems to know me. In the last week the dementia has got a little bit worse. They say she hasn't got an infection and I don't think so too. The nursing home are much better with the continence pads than the care homes were.
I think her skin has changed colour too and so has its tone She was in an unrousable sleep yesterday early evening although she had eaten and drunk loads in the day. Today one of the carers said she seemed to get like that once a month or so but I haven't seen it. Her friends have said that she sometimes has been like that when they have been. I haven't seen her like that before. She has seemed so good there until now. She watches her nice big telly and seems so happy and smiley (I know she has bad dementia and is incontinent). I was told last week that the GP (continuing care) had said how bright she was and that they should get her out of bed more) Is this part of the progression or just a blip? Is what the carer said true or just for me? She just seems different. It could also be the heat although I am not convinced. The North East of England hasn't been as hot as the South. I am an only child and am single and don't really have anyone to ask. I know I will lose her at some point but I didn't think it happened like this. It is hard going to work in the day and the home at night. I go almost every night but I struggle to go to work and then to the nursing home. My mum has no other relatives so doesn't get any other visitors apart from friends who go about once a fortnight. It is sometimes hard to get an answer from the carers or nurses. Sorry about the rambling but I just get so wound up with this awful disease
I think her skin has changed colour too and so has its tone She was in an unrousable sleep yesterday early evening although she had eaten and drunk loads in the day. Today one of the carers said she seemed to get like that once a month or so but I haven't seen it. Her friends have said that she sometimes has been like that when they have been. I haven't seen her like that before. She has seemed so good there until now. She watches her nice big telly and seems so happy and smiley (I know she has bad dementia and is incontinent). I was told last week that the GP (continuing care) had said how bright she was and that they should get her out of bed more) Is this part of the progression or just a blip? Is what the carer said true or just for me? She just seems different. It could also be the heat although I am not convinced. The North East of England hasn't been as hot as the South. I am an only child and am single and don't really have anyone to ask. I know I will lose her at some point but I didn't think it happened like this. It is hard going to work in the day and the home at night. I go almost every night but I struggle to go to work and then to the nursing home. My mum has no other relatives so doesn't get any other visitors apart from friends who go about once a fortnight. It is sometimes hard to get an answer from the carers or nurses. Sorry about the rambling but I just get so wound up with this awful disease