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My husband has Lewy body dementia.

Maisieknit

Registered User
Jan 19, 2015
1
My husband has hallucinations, and cannot understand why I cant see what he is seeing. I wish to know how to respond in the best way to help him.
I would greatly appreciate any advice
 

Canadian Joanne

Volunteer Moderator
Apr 8, 2005
16,304
66
Toronto, Canada
Hello Maisieknit and welcome to Talking Point (TP). I'm not sure how you can deal with it, except to say that if you wear glasses, you can blame it on your glasses?

From what I understand about LBD, Alzheimer's and Parkinson's medications can be beneficial. Antipsychotics are very much contraindicated, far more so than for other dementias, as they cause a worsening of symptoms and even cause other major issues. Is your husband currently on any medications?

I did think perhaps you could refer to things you see that he doesn't but that might only confuse and anger him.
 

nitram

Registered User
Apr 6, 2011
19,894
North Manchester
If they are not disturbing him just passively go along with it and try to distract him.

A combination of Memantine and Sodium Valproate eased things quite a bit with my wife who also had LBD although the Sodium Valproate was originally prescribed to control Parkinsonism.
 

Trace2012

Registered User
Jun 24, 2013
162
What if these hallucinations are scary for the person, my mam is waiting for the day scan to diagnose LBD and my mam has these delusions about the neighbours, they are that real to her that she had to be sectioned as she sed she wanted to kill them! She is on a anti phycotic at the minute which is a low dose but isn't working at all! Infact I honestly think she's worse! It's stressing my and y kids out as we also live with her xx


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henfenywfach

Registered User
May 23, 2013
332
rct
My husband has hallucinations, and cannot understand why I cant see what he is seeing. I wish to know how to respond in the best way to help him.
I would greatly appreciate any advice
Hi maisieknit

I care for my dad who has dlb.
Unfortunately there are no licenced meds for lewy bodys..but sometimes.donepezil is given for the alzheimers symptoms to help the cognitive side...
There can be delusions where they see things you see just differently..and tell a different story to them...or hallucinations where generally they cant be ..and sometimes noises animals or people..these sometimes startle cause distress upset wellbeing..so get assisted by medication sometimes.
My dad sees a police car and describes a riot arrests fighting and people running about...its only actually a police car parked .

If which ever causes major upset harm in anyway then we address it..if not then we either distract or agree or acknowledge...we never ever disagree or correct....

If your brain no matter how damaged gave you a response and someone kept on correcting you..i would imagine it could be so annoying..
Aggitation and aggression are forms of communicating really..not nice to be on the recieving end..but over time you learn what upsets or doesnt and sometimes read body language.
Best wishes

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