My husband has FTD

[Tanzicat]

My husband has Frontal Temporal Lobe Dementia now known as FTD and previously known as Parks disease.
Diagnosed 4 years ago he can no longer speak, read or write.
He falls over a lot and spends his days endlessly sitting down watching tv, which worries me.
I have to cut his food up because he is prone to choking but apart from that he can still shower and dress and toilet himself.
What I find so hard is the loneliness. I feel guilty for even saying it because it must be so much worse for him as the back of his brain still works and he knows what is going on.

 

[Izzy]

Good morning @Tanzicat and welcome to the forum.

I’m so sorry to read about your husband. Please don’t feel guilty - easy for me to say I know .

I hope that being part of this forum helps a little with the lonliness. There’s always someone here to listen and suppport.

Keep posting.

 

[canary]

My OH is the same, so I know what you mean about lonelimess. I find chatting on here a good way of filling that gap, although I still yearn for the days when OH and I could have proper conversations. TBH, I am not sure that OH is actually aware of how I am feeling - he seems quite content in his silent bubble scrolling though his android tablet and watching TV