My early onset dementia is going fast and don't know what to do

Discussion in 'I have dementia' started by Tovah, Nov 20, 2015.

  1. Tovah

    Tovah Registered User

    Jul 22, 2015
    21
    I am early onset and I seem very, very confused today. Is that to be normal with this? Am I on a sliding into dementia which is worse than it's ever been? Can you tell me of your experiences please?
     
  2. Sue J

    Sue J Registered User

    Dec 9, 2009
    8,035
    Hi Tovah

    Sorry you're having a particularly bad day today. I have had symptoms for 5-6 years now (I lose track) and sometimes I go through phases where everything is much worse but then I seem to equally have phases where my symptoms improve quite a bit. Whilst I am nowhere near pre symptom functioning I do manage better on the whole as I learn to accept and adjust to a new way of life.

    I hope this confusion passes for you and you will feel much better tomorrow.
    Best wishes
    Sue:)
     
  3. fizzie

    fizzie Registered User

    Jul 20, 2011
    2,731
    Can i just suggest that if you still feel confused tomorrow you just check that you do not have a urinary infection - an infection does affect very much how you feel. It may not be but it is always worth checking x
     
  4. Sue J

    Sue J Registered User

    Dec 9, 2009
    8,035
    Fizzie's made a really good point Tovah. I know these are exactly the sort of things I can't work out for myself when I am worse than usual and such a prompt is exactly what I need to enable me to get things checked out. When you are more confused its harder to look after yourself and do the right things, like drinking fluids to try and help keep infections at bay.

    Take care:)
     
  5. Countryboy

    Countryboy Registered User

    Mar 17, 2005
    1,427
    Male
    Cornwall
    #5 Countryboy, Nov 21, 2015
    Last edited: Nov 21, 2015
    Hi I can relate your being confused I was diagnosed with Alzheimer’s 16 years ago this month the problem for me in the beginning for me I knew my strengths and weaknesses and was beating myself when I was having difficulty with my strong subjects and realized the harder I tried the worst it got so I soon learnt to go with the flow and it doesn't necessarly go that fast but there again we are all different
     
  6. fizzie

    fizzie Registered User

    Jul 20, 2011
    2,731
    Hi Tovah, Do you feel a bit better today or are you going to consider a visit to your GP?
    Thinking of you x
     
  7. john51

    john51 Registered User

    Apr 26, 2014
    289
    Male
    Dunstable, Bedfordshire
    Hi Tovah

    I hope things are better for you today.
    When I first tried to read your post I was having a bad day; total confusion. It is so depressing that you are more helpless than a baby.
    Today I am much better, but can't type properly. You couodnt imagine how many times I'm having to correct things.
    I was diagnosed 18 months ago and some days (actuallt minutes and seconds) are better than others. Yesterday my wife took me to visit our son so we could choose and buy a watch for his birthday with him. I think I probably spoiled the day for both of them and me too, but I have only a very weak memory of it.

    Unfortunatley you will have better and worse days (or minutes and seconds) but it is worth checking out the infection as others have suggested.

    I hope things are better today.

    Regards

    John
     
  8. Tovah

    Tovah Registered User

    Jul 22, 2015
    21
    Thank you to all who sent their kind words

    So, this is what happened:

    I just plum forgot that I was part of this forum. I accidentally came upon my own entry and was so happy that I belong here.lol.

    So, when I first wrote, it was about 2 months ago.

    My memory loss appears to be progressing quickly.

    It's the worst when I'm on the phone or go to a new place.

    I had a doctor's appointment today and things were very confusing and I left without making a new appointment, which my Dr. said for me to do.

    I can only drive about a mile from my house. I don't trust myself anymore.

    I really just wanted to thank all of you who reached out to me and NOW I KNOW that I'm here.

    Tovah
     
  9. Countryboy

    Countryboy Registered User

    Mar 17, 2005
    1,427
    Male
    Cornwall
    Hi being confused doesn’t necessarily relate to dementia epically if what it is confusing is something new to you that happens to everyone I have learnt over the years not to worry about it these day I don’t remember I forgot anything no point in beating yourself up just move on
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.