Hello lovely people, I have only been on this support page for less than a week. My dad was diagnosed with dementia with lewy bodies and parkinsonism in November 2018. He had gone down hill this last couple of months and was put on palliative care on Friday. They fitted him with a driver for medication on Monday and had been out of it for most of the time until this morning at 6.30ish. My mum woke me and my hubby up saying that he was making a noise when breathing. We came in to have a look and it was quite apparent that he wouldn't be with us for long. I tried ringing nurses but they were out on calls but thankfully an out of hours G.P was across the road at the local hospital. It took him 5-10 minutes to be at our door just as dad was taking his final breath. No longer in pain, no longer suffering with that awful disease. I am numb! We knew this day was coming but just didn't expect it so soon. I can say that he passed peacefully as he wanted at home with all his family around him. Loving and caring for him til the end. I am more than devastated but I know hes better off now. Worst day ever! I am shattered but cannot sleep. So much going round in my head I just cant settle. It feels like something is missing in the house and not right. I don't know how I should feel! Im gutted that he's gone but im also relieved. That just feels wrong. I know good memories will come but when one does come through , I just cry again. My eyes are so sore from crying already. I don't know how I will cope at the funeral. Dementia, you suck! I hope the research finds your weak spot soon so they can get rid of you and save other families from this nightmare. Thank you for ready my long post, I think I just needed to get it out x x