I am silently screaming. Why doesn’t anyone listen. Nights are the worst.
I spend all night hanging on to Lionel in bed. His idea of turning over is to wake me (I am awake) then he slowly gets out of bed, turns around two or three times, and gets back into bed in exactly the same position.
If , in desperation, I sleep in the spare room, he falls out of a double bed. The respite home got round this by putting mattress on the floor (but they had nurses to help him stand up in the morning.)
Had seen O.T. and she was recommending some more grab rails in the shower, have been waiting now 2 months for these.
Telephoned respite home yesterday to arrange some time for planned holidays next year, only to be told they will not book so far in advance, but will ring me back…..
…………yes I am still waiting.
Today the transport for day care was late……yet again. Please stop the world, I WON’T TO GET OFF. Connie
I spend all night hanging on to Lionel in bed. His idea of turning over is to wake me (I am awake) then he slowly gets out of bed, turns around two or three times, and gets back into bed in exactly the same position.
If , in desperation, I sleep in the spare room, he falls out of a double bed. The respite home got round this by putting mattress on the floor (but they had nurses to help him stand up in the morning.)
Had seen O.T. and she was recommending some more grab rails in the shower, have been waiting now 2 months for these.
Telephoned respite home yesterday to arrange some time for planned holidays next year, only to be told they will not book so far in advance, but will ring me back…..
…………yes I am still waiting.
Today the transport for day care was late……yet again. Please stop the world, I WON’T TO GET OFF. Connie