Friday 29th
Situation mainly unchanged; Mum getting weaker, can't even sit up in bed without help now.
Sylvia said:
I didn`t realize you only had 4 night sitters available. I thought they would be coming as long as they were needed.
Sylvia, I don't think I'm
limited to 4, it's just that apparently they arrange them in 'blocks' of a fortnight at a time, since palliative care is usually quite short-term.
The Community Nurse team tell me that they have asked for further night-sits for me, so hopefully they will materialise soon.
ShazMax said:
what a wonderful person you are to take time to help others while going through a hard time yourself.
Shaz, I appreciate the kindness behind your remark, and other comments of a similar nature in this thread from other people. However, they embarrass me a great deal.
Whilst obviously I do hope that this record of events - and the helpful suggestions put forward by other TP members - may help anyone else faced with similar difficulties, I am USING it as therapy, to help me rationalise my thoughts and express my feelings in what is more or less the only way open to me. Of course, I can talk to Mike and to close friends, but there is only so much you can expect friends & family NOT actually involved in caring to understand, absorb & tolerate before they switch off. I don't blame them; until they've been here - where WE all are - they CAN'T really understand fully. So this thread is selfish as well, in a way.
None of us volunteer to be put in the position of 'family carer', it is a result of some sick spin of an evil roulette wheel somewhere & "tag, you're it!", you're in it.
Dear lord, several people here are doing it for the 2nd time around, caring for a partner having already been through the mill once with a parent. Many carers have jobs and children to care for & juggle with, in addition to caring for Mum/Dad.
My own circumstances are almost tailor-made for a family carer; not married, no children, no one else reliant on me for anything and I'm an independent person. I took redundancy two & a half years ago, and threw myself on the
mercy of the state benefits system. Having worked full-time & non-stop for 37 years, paying full-whack contributions, I can justify that to my conscience.
None of these things are heroic; it's just the way I'm made & how things worked out. I only have 1 brother, and he's been in Australia for nearly 40 years.
During the 'downs' of my selfish life (and there have been a few!) my Mum has always been there for me, without question. How could I do anything else?
Mum's Alzheimer's has only really presented as severe short-term memory loss and, more recently, anxiety & insecurity. Her present condition is as much to do with her age as with Alzheimer's. It is only in the last couple of months that she has needed anything resembling nursing care, and even now she is just quietly fading away in her bed. There is no bizarre behaviour, no nastiness, and I fully realise I am incredibly lucky in this. She could be so much worse. There is no reason for her to be anywhere other than in her own home, with her own things (not forgetting the cat!) around her. And I have been lucky in that, at this late stage, I have been given all the support I need to be able to look after her there, thanks to a good GP, Community Nursing team and Marie Curie night-sitters.
Good night my friends, thank you for your support & love.