It has got to the point now that my mum is to go into care. The reason for this is that my step father can no longer cope with the demands of looking after her and it is considered that the situation at present puts both of them at considerable risk, particularly as he is a diabetic with other health problems. Extra help in the home is not an option, as the house is not fit for purpose, especially with her IBS, and the hygiene issues associated with it that are getting out of control.
It would not be a problem, but every attempt to get mum into respite in the past has failed. She even refused to go to a day care centre and became very disorientated, agitated and aggressive.
It is a very fine line between her free choice and safeguarding her and her husband. I am very upset at the prospect as it feels that we are going behind her back but everyone agrees that this is the best, in fact the only, option.
I can only hope that she settles. At present she sometimes thinks she is not in her own house and asks to be taken home, so I hope after a short time she will accept the situation and not notice the change.
Does anyone have any thoughts on this and experiences that you can share?
Hi Emily, my mum went into a home on Sunday. It has been coming for a while. She has Lewy Body dementia which is an aggressive type and she has been truly awful to my dad. Well, not really my dad because she doesn't know who he is. She shouts at him for wearing her husbands clothes, she told the neighbours that he was beating her up - he wasn't. Anyway it all came to a head on Sunday when dad had a suspected stroke and was taken into hospital. There is no way she could be at home on her own, I can't look after her full time as I have just had a major operation so I called the home we had chosen and they had a room and they took her in straight away after some subterfuge to get her there. She does not know she has dementia. In her mind everyone else is wrong, everyone is out to get her. She rarely has loving moments like my mum really was.
I have to believe that she is in the best place, safe. Good food, great care. It was a straight choice between her and my dad, she was killing him. He has had 2 strokes now probably caused by the stress of looking after her.
He came home from hospital yesterday and is finding it hard without her. He knows it was awful but he feels so guilty that he is at home and she isn't . My biggest nightmare is that he caves in and brings her home.kt is their 66 wedding anniversary at the end of this month.
We did not tell mum where she was going, told her we were going out for a drive,stopped off for a cup of tea (at the home) I told her she was going to stay there while I went to see dad at hospital. I broke my heart as I left cos I knew I wasn't going back. Four days in she is settling, sleeping at night now in her own bed in her own room. first couple of nights she wandered all night long. The home have said not to go on for two weeks to give her a chance to settle which is hard.
She now has family pictures and personal things around her which must help but I keep thinking how frightened she must be... Then I think is she any more frightened there than she was at home with a man she didn't know. I have no idea what is going on in her head. Even at her own home she sometimes would fall asleep, wake up and not know where she was and get angry demanding to be taken home.
We are fully self funding so were able to choose a good home and make all the decisions ourselves without involving social services at all. Really all they did was give us a book full of homes and suggest we visit a few!
I don't feel guilty about putting her in the home - should I? What i did feel was overwhelming relief that someone else could take care of her. Does that make me a bad daughter? I don't think so. I can now give the attention she has been getting to my dad who in many ways needs it more.
Don't know if my ramblings have helped anyone, I hope so