Hello
My Mum seems so much worse since she's been in the CH (she went in six months ago). I don't know if it's the progression of Alzheimer's or a change of medication. Could certain meds dramatically increase progression? I'm finding it so hard to adjust. Initially, she seemed better in the CH, although she's always asked to go home but she became nicer to me after all the years of abuse (although the anger directed at me never goes completely!) and she was fun in the CH at first, entertaining all the staff with funny accents, almost manic at times. This is contrasted with very low moods, wishing she was dead, but she has always been like that. However last week she talked nonsense and was completely confused and acting differently to any time before. Not helped by a link worker who, in my opinion, shouted at Mum when doing a (completely futile) memory test and then said Mum had advanced dementia? How can she tell after 15 minutes???? when she's never met her before and she's on new meds.
I am wondering if (a) I just did not notice how bad things had got before she was sectioned (b) if the meds have changed things (c) the illness has progressed speedily and (d) if she'd stayed at home would she have been better off. I just can't comprehend this almost overnight progression. Has anyone heard of this? She's more paranoid than ever too and I wonder if that's the meds. All ifs and buts.....
One more thing is my sister rings the CH and asks to speak to Mum. Sister has no concept of the anxieties and agitation of the disease having never had any input at all apart from one visit a year. Her calls apparently really upset my Mum (the CH told me) and yet my sister insists on speaking to her as though she's still the same person. I feel very upset about her lack of awareness upsetting mum but also trying to be involved with the CH when she did nothing in the past, not even a bag of shopping or one appointment to help Mum or me. I need to let the anger go, but it's hard, esp as she emailed me 6 weeks after mum went into the CH telling me to rent the house and 'manage' mum's possessions, and that I must act in her best interests! Sorry to offload on here. I feel so sad and am probably sort of adjusting to 'losing' Mum.
My Mum seems so much worse since she's been in the CH (she went in six months ago). I don't know if it's the progression of Alzheimer's or a change of medication. Could certain meds dramatically increase progression? I'm finding it so hard to adjust. Initially, she seemed better in the CH, although she's always asked to go home but she became nicer to me after all the years of abuse (although the anger directed at me never goes completely!) and she was fun in the CH at first, entertaining all the staff with funny accents, almost manic at times. This is contrasted with very low moods, wishing she was dead, but she has always been like that. However last week she talked nonsense and was completely confused and acting differently to any time before. Not helped by a link worker who, in my opinion, shouted at Mum when doing a (completely futile) memory test and then said Mum had advanced dementia? How can she tell after 15 minutes???? when she's never met her before and she's on new meds.
I am wondering if (a) I just did not notice how bad things had got before she was sectioned (b) if the meds have changed things (c) the illness has progressed speedily and (d) if she'd stayed at home would she have been better off. I just can't comprehend this almost overnight progression. Has anyone heard of this? She's more paranoid than ever too and I wonder if that's the meds. All ifs and buts.....
One more thing is my sister rings the CH and asks to speak to Mum. Sister has no concept of the anxieties and agitation of the disease having never had any input at all apart from one visit a year. Her calls apparently really upset my Mum (the CH told me) and yet my sister insists on speaking to her as though she's still the same person. I feel very upset about her lack of awareness upsetting mum but also trying to be involved with the CH when she did nothing in the past, not even a bag of shopping or one appointment to help Mum or me. I need to let the anger go, but it's hard, esp as she emailed me 6 weeks after mum went into the CH telling me to rent the house and 'manage' mum's possessions, and that I must act in her best interests! Sorry to offload on here. I feel so sad and am probably sort of adjusting to 'losing' Mum.