I have just read all your comments and feel so sad and upset. On the one hand it is a comfort to know there are so many of us in this awful situation. We all seem riddled with guilt and pain, but knowing our loved ones are living in a 'no mans land' or still desperately trying to hang on to everything that was normal or have deteriorated so suddenly. I am just behind where you are on this journey, Mum hospitalised with circulatory problems, dreaded dementia was diagnosed 18 months ago and we limped along with me being told nothing could be done if Mum did not accept help. At least the hospital are able to see she needs more than just medical attention but leaving her anxious and rambling is heart-breaking. TP does a wonderful job to link us and provide support though.