Hi everyone,
I am new here,and feel very devastated at the moment.
My lovely mum,who is 64 and has already been through so much in her life,has just
been diagnosed with a rare form of Alzhiemers.
We have yet to find out what this means for her,as we have not been able to talk with her consultant yet.
It started we think,with her having lots of falls,and feeling very dizzy and unbalanced.
She also suffers from a mental health condition,and we feel because of this her symptoms were not taken seriously.
She was admitted to hospital with a mental breakdown at the start.During this time,she started to have problems walking,and ended up in a wheelchair on the ward after falls,and experiencing a great fear of falling.
Nothing was done,re finding the cause,or no physio was given,despite our asking frequently.
After a good few months of this,and her consultant saying at the end,she is mentally well,no dementia etc she ended up having a stroke on the ward.
This wasnt treated for 48 hours!,with our persistence she ended up seeing a consultant who said she needed an emergency op to clear artery.
She had this,it was major,touch and go after and she pulled through.
3 weeks after this,we noticed a major difference in her,not connected to the previous mental health issues.
Word mix ups,confusion,memory problems,the list goes on.
We told everyone something was wrong,repeatedly.
It took a year!!!!!for anything to be done,only because we kept pushing.
Mum has declined rapidly,in a year,she is unable to walk,very muddled,incontinent both ways etc.
We have also just been told,no medication could have helped,or could help,and nothing can be done for her
Has anyone out there had any similar experience?
We always thought alzheimers was not this fast and aggressive.
Thankyou,a very sad daughter x
I am new here,and feel very devastated at the moment.
My lovely mum,who is 64 and has already been through so much in her life,has just
been diagnosed with a rare form of Alzhiemers.
We have yet to find out what this means for her,as we have not been able to talk with her consultant yet.
It started we think,with her having lots of falls,and feeling very dizzy and unbalanced.
She also suffers from a mental health condition,and we feel because of this her symptoms were not taken seriously.
She was admitted to hospital with a mental breakdown at the start.During this time,she started to have problems walking,and ended up in a wheelchair on the ward after falls,and experiencing a great fear of falling.
Nothing was done,re finding the cause,or no physio was given,despite our asking frequently.
After a good few months of this,and her consultant saying at the end,she is mentally well,no dementia etc she ended up having a stroke on the ward.
This wasnt treated for 48 hours!,with our persistence she ended up seeing a consultant who said she needed an emergency op to clear artery.
She had this,it was major,touch and go after and she pulled through.
3 weeks after this,we noticed a major difference in her,not connected to the previous mental health issues.
Word mix ups,confusion,memory problems,the list goes on.
We told everyone something was wrong,repeatedly.
It took a year!!!!!for anything to be done,only because we kept pushing.
Mum has declined rapidly,in a year,she is unable to walk,very muddled,incontinent both ways etc.
We have also just been told,no medication could have helped,or could help,and nothing can be done for her
Has anyone out there had any similar experience?
We always thought alzheimers was not this fast and aggressive.
Thankyou,a very sad daughter x