My mum was diagnosed with alzheimer's in 2014 at the age of 67 but she had signs probably two years before this. I got a call in mid Feb 2021 from my mums Care Home saying we needed to start thinking about end of life plans, her weight had dropped and her eating has declined. She's doubly incontinent, leg and arms are contracted and is pretty much non verbal. It's now been a roller-coaster of mum eating teaspoons of food and then perking up again. The care home staff are so inconsistent with their updates on her, one telling me today they had a conversation when she barely can make noises. It's so hard to know what to expect I believe she's at the green stage of the golden standard framework. I've been asked if it's okay to ring if she declines in the night back in February. But when I ring now they act like I'm asking too much and she's fine it's so hard to process and the support from the home is so lacking. They seem to keep saying there's been a miscommunication, but her end of life medication is in place for when the time comes. This is so hard for me and my sisters this is more of a cathartic rant as I know many people have posted similar stories. But I just feel care homes don't give accurate information and seem to like to pretend things are okay. They've let me and my sisters have special visits before the care home visits were lifted nationally, so I'm just sleeping with my phone by my side expecting the worse but today she's eaten really well. It's very hard and my heart goes out to everyone impacted by this horrific disease.