Hey...
My mum has fronto temporal dementia and was diagnosed 3 years after my dad died from throat cancer. They reckon she may have already had it for 2 years prior. They said normally people die with 5 years of getting it and we're now on the 6th year after diagnosis (possibly 11 years of her having the dementia).
I am the youngest of a few and have not had to do a thing in fact to some degree I can't due to the attitudes of my siblings. I used to see her every week but since having a child who is now two, probably only see her a handful of times in the year.
She's not happy and I can't do anything she indicates that she doesn't want to be here anymore and I try and brush it off when I see her and say positive things but I have no idea how much of her is left and it's hard sometimes. I don't know how to deal with it sometimes... I use my kid as an excuse to not see her (I can't take them to the care home as it wouldn't be fair on her). She was such an intelligent woman and the people in the care home don't see that, they'll never see how much she's lost...
Just needed to let this out...
My mum has fronto temporal dementia and was diagnosed 3 years after my dad died from throat cancer. They reckon she may have already had it for 2 years prior. They said normally people die with 5 years of getting it and we're now on the 6th year after diagnosis (possibly 11 years of her having the dementia).
I am the youngest of a few and have not had to do a thing in fact to some degree I can't due to the attitudes of my siblings. I used to see her every week but since having a child who is now two, probably only see her a handful of times in the year.
She's not happy and I can't do anything she indicates that she doesn't want to be here anymore and I try and brush it off when I see her and say positive things but I have no idea how much of her is left and it's hard sometimes. I don't know how to deal with it sometimes... I use my kid as an excuse to not see her (I can't take them to the care home as it wouldn't be fair on her). She was such an intelligent woman and the people in the care home don't see that, they'll never see how much she's lost...
Just needed to let this out...