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Mum diagnosed at 55. Any help or support?

Katie1994pick

Registered User
Nov 15, 2016
1
Im 22 and youngest of four. I am also a manager of a care home and hear of lots of different charities for Alzheimer's. My mum is 55 and has been diagnosed with vascular dementia since Christmas. We haven't heard or been offered any support to help mum day to day.
 

canary

Registered User
Feb 25, 2014
11,664
South coast
Hello Kate and welcome to Talking Point
Im so sorry to hear about your mum - she and you are both so young for this :(

Im afraid that in many areas after a diagnosis of dementia the family is just left to get on with it. What sort of support does your mum need? Have you asked Adult Services for a needs assessment? My husband is 61 yrs old with FTD and there is very little out there for someone of working age - we have had to be creative in finding things that he can do and have organised things ourselves. Does your mum have ESA and PiP? These benefits can help to pay for things to help her.
 

Mulberry50

Registered User
Feb 5, 2015
10
Maidenhead, Berks
Hi Katie
Welcome to Talking Point where I am sure you will find further support which for those of us trying to cope with Early Onset is essential.
A potential starting point to find some help is via YoungDementiaUK who are beginning to act as a central source of information for Early Onset.
I am unable to see from your details where you are geographically but I hope that website helps. I find that another good source of info is Unforgetable.org
Hope this helps
 

Wobbley

Registered User
Jul 29, 2016
9
Im 22 and youngest of four. I am also a manager of a care home and hear of lots of different charities for Alzheimer's. My mum is 55 and has been diagnosed with vascular dementia since Christmas. We haven't heard or been offered any support to help mum day to day.
My husband is 56 and we were told in July that he had 'Alzheimers type dementia'.

After a boat load of Alzheimer Society info sheets, most of which did not apply to him we finally got to see oyr first specialist last Monday.

Well, not the Consultant but a trainee who was doing his MH rotation.

The problem with early onset is that it is classified alongside later onset, and therefore the attitude os 'you are old so what do you expect' kind of attitiude.

Info on it is very sketchy, professional knowledge is limited and help is hard to find.

I have had a Carers Assessment - phone the local council and tell them you want one.

A care assessment for my OH cam come later as his problems increase - they are supposed to be legally committed to do it.

Have a mooch on the internet and find the info you want.

Don't let the ******s wear you down as that will happen soon enough.
 

kathleenr

Registered User
Aug 19, 2013
33
Diagnosis at 55

It's really hard when your loved one gets dementia of any kind too young for the system. Be persistent, get lasting powers of attorney in place so you can negotiate on her behalf to get social services assessment for her therapy and care and carers assessment as well. Hope it goes ok