Hello, I am a 26 year old daughter of a 56 year old woman with frontotemporal lobe dementia. My mom had her more "definitive" diagnosis about a year ago, before That we thought it was alzeihmers. I was living out of the country and moved back to be with mom when things started to get difficult at home and we have been living together for a year now. She can barely talk, her spine has begun to curve and her walking has changed, for example her steps are short and abrupt like an older lady. This whole thing is pretty challenging but the main thing that has me worried out of my wits is that she fell out of bed a while Back, pretty bad, had to get her stitches On her brow. So i moved us ( i share a room with her) into the other room where there is a built in bunk bed, i put her bed under the bunk with her head towards the ladder with a pillow in the way, worked for a few nights, but today she sat up and plunged into the ground again, her cheek is swollen, it is awful. I had her matress on the floor but ive seen her get up and lose her balance and fall right on her bum, it would scare me if she hit her head or hurt her hip or bottom severly, how can i avoid this? She is super Active, keeps me very very busy all over the house she walks Around fast and im sure a railing wont stop her. I feel awful like it makes me feel guilty when these things happen, i want to take care of her better and i have thought About respite because i know there may come A time where i may not be capable of caring for her on my own, we have no other familly close by. There is only one respite where i live, i went and asked just to begin getting an idea of how things go and i was shocked when they said they have no space for anyone, the director explained to me that unfortunately many families abandone relatives their and that they are having a very difficult time Keeping up with the patients they already have. I am not wanting to put mom in respite too soon but the fact that that may not even be an option has me a bit frightened, what am i to do? It is comforting in some way to know that i am not the only one out there who loves someone with this illness, any advice from you that have been through a similar experience will be appreciated, thank you.