1. iffy

    iffy Registered User

    Nov 10, 2015
    6
    Hi All, Im new on here. About two years ago my wife was becoming depressed and having bad dreams. She was referred to a psychiatrist who said she had PTSD. He said that because her mother had early onset Alzheimer's that she had been worried about it being hereditary. She was given antidepressants but no other tests. About 4 months later she was unable to hold a conversation and going back to the doctor resulted in deferent tablets. Well to cut a long story short she was eventually referred to the over 65 people who did the tests and Alzheimer's was diagnosed. Because she was only 62 at the start she did not fit into a box and was passed from pillar to post. Has anyone else experienced anything like this and what can I .
     
  2. Cat27

    Cat27 Volunteer Moderator

    Feb 27, 2015
    10,174
    Merseyside
    Welcome to TP :)

    Did your wife visit the memory clinic?
     
  3. iffy

    iffy Registered User

    Nov 10, 2015
    6
    No she does not visit any clinic
     
  4. fizzie

    fizzie Registered User

    Jul 20, 2011
    2,740
    Hi there, welcome to TP you will find a lot of support on here. I'm so sorry to hear that you have had such a difficult journey.
    I'm not very clear - are you comfortable that she now has the right diagnosis? or are you looking for help to find a second opinion?
    keep posting there is so much experience on here that someone will be able to answer your questions
    xx
     
  5. Trisha4

    Trisha4 Registered User

    Jan 16, 2014
    2,442
    Yorkshire
    Hi. We had a fairly similar experience. My husband struggled with names and words in his early 60s. For a year of going back and forwards he was told it was the normal ageing process. After further tests and a brain scan he was diagnosed with Alzheimer's. We were told it was uncommon because his main problem was aphasia (language disorder).
    He is now probably in the middle stage of AD, still very physically fit but struggles with language both speaking and comprehension. He is easily confused and has memory problems. He cannot write and has lost understanding of numbers.
    I am his full time carer. Are you still working?
    Now you have a diagnosis have you sorted things like Power of Attorney and attendance allowance?
    Keep posting and looking on here as you will find support and understanding on your journey.


    Sent from my iPad using Talking Point
     
  6. iffy

    iffy Registered User

    Nov 10, 2015
    6
    I am satisfied that she has the right diagnosis now. Whats getting my goat is that if she had been diagnosed correctly earlier she could have had treatment that could have slowed the progression of Alzhimers
     
  7. LYN T

    LYN T Registered User

    Aug 30, 2012
    6,968
    Brixham Devon
    Hi Iffy

    Welcome to TP.

    You could have been writing about my late Husband's mis-diagnosis:( Pete was depressed/anxious and had a psychotic episode. He was really ill and was sectioned. (the first of five sections) His psychiatrist refused to consider that Pete was suffering from dementia even though his Mum, and Grandma had early onset and his Dad was suffering from dementia in his early eighties.Pete kept telling anyone who would listen that he was losing his memory-I'm ashamed to say I agreed with the medics that he was suffering from depression.

    Pete had a brain scan and the tangles/plaques were missed by the neurologist-it was only picked up two years later when he was sectioned again and a fresh opinion was given by a different consultant. The original scan showed that he was moderate stage- a second scan showed that he had progressed to low severe.

    I hope that you are now getting some support?

    Take care

    Lyn T XX
     
  8. stanleypj

    stanleypj Registered User

    Dec 8, 2011
    10,650
    North West
    Forgetting about the medication for the moment (that may not have helped) it is at least possible that both the diagnoses were correct, isn't it?

    When you ask what you can do, I'm really not sure what sort of answers you expect. Do you want to follow-up on the first diagnosis, which may have been wrong? Or do you want to know what to do to help your wife now?
     
  9. iffy

    iffy Registered User

    Nov 10, 2015
    6
    Sounds exactly like my experience. My wife was sectioned after a psychotic episode. I am getting all the support I need at the moment. They have not told me what stage she is at. I will have to ask. Did you do anything about the misdiagnosis

    dave
     
  10. LYN T

    LYN T Registered User

    Aug 30, 2012
    6,968
    Brixham Devon
    Hi Dave.

    No I didn't do anything about the mis-diagnosis. I found out that the Neurologist had a tribunal as he wanted to carry on working after the age of 65 and he wasn't allowed. He was claiming age discrimination. The fact he wasn't allowed to carry on practicing made me wonder if he had possibly made other bad judgements.

    To be honest I was so busy fighting other battles I didn't have the energy to start the ball rolling regarding any complaint. I was also assured that Pete would get more help when I was introduced to his Hospital consultant. She was a wonderful woman who kept me informed of what was happening. I felt that I had someone on my side.

    Re what stage your wife is at; I made it perfectly clear that I didn't want anything sugar coated and I needed to know how ill Pete was. Pete was also diagnosed with bi-polar and later parkinson's and prostate cancer-so there was a lot going on.

    Take care

    Lyn T XX
     
  11. iffy

    iffy Registered User

    Nov 10, 2015
    6
     
  12. Chrismitch

    Chrismitch Registered User

    Jun 23, 2011
    127
    I thnk the terminology in the uk is so confusing. Memory clinic - for me that conjures up bricks and mortar. Surely it's a memory service. You see an occupational health worker (!?) and a consultant - so vague, so inappropriate. Does the nhs think we would be frightened to hear the words psychiatrist and his/her team? A neurologist gets involved only if the Psy thinks it's necessary (!). They ARE very expensive these scans.
    To be diagnosed by a neurologist after a scan makes much more sense to me.
     

Share This Page

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.