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Memantine ..... how long until I see any effect?

Discussion in 'I care for a person with dementia' started by Hez74, Sep 10, 2019.

  1. Hez74

    Hez74 Registered User

    Aug 31, 2019
    11
    Mum (84) recently diagnosed with dementia & prescribed Memantine titration pack .... we’re up to 15mg per day so 2 weeks and 2 days in .... when should I see it having any effect? Not expecting miracles but Mum’s symptoms seem to be getting worse
     
  2. Ludlow

    Ludlow Registered User

    Jul 20, 2016
    108
    SE England
    My mum has been on Memantine for 3 years now and I have to say that I have never seen "any effect".
    When I wanted her to stop taking it the consultant insisted that she would get worse faster if we stopped so we have just carried on with it.
    I've no idea whether it really is slowing down the progression but as it doesn't appear to have any adverse effect we are just going with it.
    Sorry, not what you wanted to hear, I expect.
     
  3. Hez74

    Hez74 Registered User

    Aug 31, 2019
    11
    Thanks Ludlow .... can’t ask for more than honesty & appreciate you replying .... as you’re only too aware, this is an awful disease & you live with unpredictability ...
     
  4. Ohso

    Ohso Registered User

    Jan 4, 2018
    156
    Mum was prescribed this a few months ago and apart from a minor feeling that she was better for a couple of weeks once she was on the full dose ( after 4 weeks) I dont think she has improved at all.

    I was thinking of asking for a review with the aim to take her off it so interested to read that she might have to remain on it long term as withdrawal might make her worse, I didn't know that.
     
  5. RosettaT

    RosettaT Registered User

    Sep 9, 2018
    254
    Female
    Mid Lincs
    My OH appeared to have more clarity in thinking & was quicker in his responses about 2 weeks after he started taking it.but it's really an unknown quantity because I have no idea what he would have been like without it. The memory test he took after about 4 mths had improved a little too but again whether he was just having a good day I have no idea. Overall I wouldn't want him to stop taking it.
     
  6. Hez74

    Hez74 Registered User

    Aug 31, 2019
    11
    Hi Ohso .... so hard to know what to do for the best .... I know there’s no cure but that the medication is meant to slow the progression .... we haven’t reached full dose yet but the periods of confusion definitely seem more regular ....
     
  7. Hez74

    Hez74 Registered User

    Aug 31, 2019
    11
    Thanks RosettaT .... it’s definitely a venture into the unknown .... glad to hear you think it helped .... guess time will tell with Mum & everyone’s experience is different ....
     
  8. Starting on a journey

    Starting on a journey Registered User

    Jul 9, 2019
    35
    Mum has just finished her second week. Is it helping her memory? Doubtful. She herself says it is calming her (she thinks it is sleeping tablets) Would I like her to stop taking it? I am so not sure......it makes her easier to manage and she's not so frightened, but I am still losing her every day.
     
  9. Prosvetik

    Prosvetik Registered User

    May 19, 2017
    3
    #9 Prosvetik, Sep 11, 2019
    Last edited: Sep 11, 2019
    My mum takes memantine since 2011. Being a doctor herself it was impossible to give her any medication earlier, though the first signs of dementia appeared in 1983,as obviously she never assumed that there was any problem with her. Watching her for all this period ( being a doctor myself) I can say, you can't expect any improvement from memantine , but it slow down the progression of this cruel disease. Mum is on 20mg, she has advanced v. dementia now, so I decided to reduce the dose to 10mg. In a week the decline was so obvious, I returned to the full dose and will never cut it again.
    I'm really sorry for my poor English, it's rapidly deteriorating since I stay with mum for the last 4 years, or maybe this family condition getting its grip on me... ;)
     
  10. Hez74

    Hez74 Registered User

    Aug 31, 2019
    11
    Thanks for your note .... so hard a journey & so hard to know what to do for the best.
     
  11. Hez74

    Hez74 Registered User

    Aug 31, 2019
    11
    Thanks so much for your message & viewpoint ... what a long journey you’ve had which can’t be easy.
     
  12. tryingmybest

    tryingmybest Registered User

    May 22, 2015
    619
    Female
    #12 tryingmybest, Sep 11, 2019
    Last edited: Sep 11, 2019
    Mementine only helps those with Alzheimers or Alzheimers/mixed dementia. It should not be prescribed for Vascular Dementia as there is nothing to help with that and research has shown it to be ineffectual. Unfortunately, some professionals seem to be prescribing it for Vascular Dementia which is pointless. It happened to my Mum but having read up on it I declined. Her GP was furious they had tried to put her on it. See NHS link below.
    https://www.google.com/url?sa=t&sou...FjAKegQIAxAB&usg=AOvVaw08NvKfIY6ArJUoKLf-K6tn
     
  13. Diannie

    Diannie Registered User

    Jun 2, 2015
    168
    Hi Ludlow. Would you be interested in my post? Husband off medication. Great improvent
     
  14. Diannie

    Diannie Registered User

    Jun 2, 2015
    168
    h
     
  15. Diannie

    Diannie Registered User

    Jun 2, 2015
    168
    Hi Ohso.i have just posted a thread re my husband’s Memantine.
     
  16. pevensey

    pevensey Registered User

    Feb 14, 2012
    187
    Female
    South East Coast.
    My hubby is on this a well, hes been taking it just over 3 years, he was told to take with his morning medication but after a while it started to make him really tired, knocked him out completely, I asked GP if he could stop taking it and he said the same thing, that if he did he would get worse very quickly, and he definitely couldn't stop it, he did cut the dose down a wee bit though and hinby wasnt so knocked out with it. But the last 8 months hes deteriorated a lot so not sure it's working so well now.
     
  17. Ludlow

    Ludlow Registered User

    Jul 20, 2016
    108
    SE England
    Only just seen this but thanks Diannie, interesting.

    (I didn't know how to make a private reply to avoid bumping this thread up. Can anyone enlighten me?)
     
  18. myss

    myss Registered User

    Jan 14, 2018
    361
    I think you can click on the member's name (while you're logged in) and it says 'start conversation' or 'send message'.
     

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