Thanks Ludlow .... can’t ask for more than honesty & appreciate you replying .... as you’re only too aware, this is an awful disease & you live with unpredictability ...My mum has been on Memantine for 3 years now and I have to say that I have never seen "any effect".
When I wanted her to stop taking it the consultant insisted that she would get worse faster if we stopped so we have just carried on with it.
I've no idea whether it really is slowing down the progression but as it doesn't appear to have any adverse effect we are just going with it.
Sorry, not what you wanted to hear, I expect.
Hi Ohso .... so hard to know what to do for the best .... I know there’s no cure but that the medication is meant to slow the progression .... we haven’t reached full dose yet but the periods of confusion definitely seem more regular ....Mum was prescribed this a few months ago and apart from a minor feeling that she was better for a couple of weeks once she was on the full dose ( after 4 weeks) I dont think she has improved at all.
I was thinking of asking for a review with the aim to take her off it so interested to read that she might have to remain on it long term as withdrawal might make her worse, I didn't know that.
Thanks RosettaT .... it’s definitely a venture into the unknown .... glad to hear you think it helped .... guess time will tell with Mum & everyone’s experience is different ....My OH appeared to have more clarity in thinking & was quicker in his responses about 2 weeks after he started taking it.but it's really an unknown quantity because I have no idea what he would have been like without it. The memory test he took after about 4 mths had improved a little too but again whether he was just having a good day I have no idea. Overall I wouldn't want him to stop taking it.
Thanks for your note .... so hard a journey & so hard to know what to do for the best.Mum has just finished her second week. Is it helping her memory? Doubtful. She herself says it is calming her (she thinks it is sleeping tablets) Would I like her to stop taking it? I am so not sure......it makes her easier to manage and she's not so frightened, but I am still losing her every day.
Thanks so much for your message & viewpoint ... what a long journey you’ve had which can’t be easy.My mum takes memantine since 2011. Being a doctor herself it was impossible to give her any medication earlier, though the first signs of dementia appeared in 1983,as obviously she never assumed that there was any problem with her. Watching her for all this period ( being a doctor myself) I can say, you can't expect any improvement from memantine , but it slow down the progression of this cruel disease. Mum is on 20mg, she has advanced v. dementia now, so I decided to reduce the dose to 10mg. In a week the decline was so obvious, I returned to the full dose and will never cut it again.
I'm really sorry for my poor English, it's rapidly deteriorating since I stay with mum for the last 4 years, or maybe this family condition getting its grip on me...
Hi Ludlow. Would you be interested in my post? Husband off medication. Great improventMy mum has been on Memantine for 3 years now and I have to say that I have never seen "any effect".
When I wanted her to stop taking it the consultant insisted that she would get worse faster if we stopped so we have just carried on with it.
I've no idea whether it really is slowing down the progression but as it doesn't appear to have any adverse effect we are just going with it.
Sorry, not what you wanted to hear, I expect.
hMum was prescribed this a few months ago and apart from a minor feeling that she was better for a couple of weeks once she was on the full dose ( after 4 weeks) I dont think she has improved at all.
I was thinking of asking for a review with the aim to take her off it so interested to read that she might have to remain on it long term as withdrawal might make her worse, I didn't know that.
My hubby is on this a well, hes been taking it just over 3 years, he was told to take with his morning medication but after a while it started to make him really tired, knocked him out completely, I asked GP if he could stop taking it and he said the same thing, that if he did he would get worse very quickly, and he definitely couldn't stop it, he did cut the dose down a wee bit though and hinby wasnt so knocked out with it. But the last 8 months hes deteriorated a lot so not sure it's working so well now.Mum was prescribed this a few months ago and apart from a minor feeling that she was better for a couple of weeks once she was on the full dose ( after 4 weeks) I dont think she has improved at all.
I was thinking of asking for a review with the aim to take her off it so interested to read that she might have to remain on it long term as withdrawal might make her worse, I didn't know that.
Hi Ludlow. Would you be interested in my post? Husband off medication. Great improvent
I think you can click on the member's name (while you're logged in) and it says 'start conversation' or 'send message'.Only just seen this but thanks Diannie, interesting.
(I didn't know how to make a private reply to avoid bumping this thread up. Can anyone enlighten me?)