Melatonin advice

deepetshopboy

Registered User
Jul 7, 2008
238
Hi anyone had there cared for on melatonin
My dads just put on that last week 2 mg once a day it’s been given by gp on recommendation from memory clinic i spent months going to and throwing between both begging for help from nov for dads restlessness sundowning agitation wandering packing etc dr wouldn’t do anything because said couldn’t because of memory clininc has to authorise it memory clininc didn’t want to because said it would make hes memory worse /falls /sleepiness etc as a result i had to get over the counter sleep tablets as he wasn’t sleeping the issue wasn’t sleeping recently as was dealt with thank god through me taking the matter into my own hands but the issues were as above agitated etc so now finally at last he's been put on low dose temporarily melatonin which is like a small miracle he is quite a lot settled he tolrated the carer the packing is almost stopped and the agitated aggressiveness is much better so i bring him back to dr next week im hoping she will continue but maybe on a higher dose anyone got experience of this ?
 

Lawson58

Registered User
Aug 1, 2014
1,983
Victoria, Australia
I haven't had any experience of melatonin with a person who has dementia but tried it myself for insomnia.

I am a great believer in giving things a try and if it's helping that is great.

It didn't help my insomnia but that is a different situation.

Keep us up to date because if you are finding it useful then someone else on Talking Point might too.
 

Izzy

Volunteer Moderator
Aug 31, 2003
60,426
Dundee
It’s a long time ago now but my husband was prescribed melatonin for a while. He had restless leg syndrome and slept very badly. To be honest it didn’t make any difference to him but everyone’s different. I hope it will continue to give your husband some relief.
 

annielou

Registered User
Sep 27, 2019
479
Yorkshire
No experience of it but glad to hear something is helping your dads agitation when sundowning. Its so sad seeing them in distress and if can get something that helps them feel more settled its a blessing. I hope he can continue on it with a benefit to it X
 

BryanG2001

Registered User
Mar 2, 2014
103
I also had to matter in to my own hands and try stuff to help my Mum sleep. Have been using Melatonin for a while trying to keep her circadian rhythm in sync with real time. Couldn't get it prescribed and I ended up getting Melatonin Gummies from the US. Can't say that it helped with sleep but she does generally stick to UK time and not Mum time.

As ever with great power comes great responsibility.
'MIND' have a list of sleeping tablets, some available over the counter, with a list of side effects:
And here are a couple of drug interaction checkers:

The Doctor is following the 'NICE' (The National Institute for Health and Care Excellence), guidance so complain to them if you think that the advice regarding falls and sleeping tablets is weighed far too heavily against the damage that lack of sleep causes. However the Doctor is allowed to treat people on a case by case basis.
 

deepetshopboy

Registered User
Jul 7, 2008
238
I haven't had any experience of melatonin with a person who has dementia but tried it myself for insomnia.

I am a great believer in giving things a try and if it's helping that is great.

It didn't help my insomnia but that is a different situation.

Keep us up to date because if you are finding it useful then someone else on Talking Point might too.
Yes i am too I believe that many pwd have been unfortunately put into homes exactly because the drs and ‘professionals ‘have not helped the situation in providing medication which may have helped the pwd leading to the carer out of despair having to put them in a home this is what nearly happened to me very sad
 

deepetshopboy

Registered User
Jul 7, 2008
238
There have been other posts about melatonin and its use. The effect is not fully understood or known, but it seems to work in some people but not others. Heavy reading but I have posted this for you, which is quite informative but difficult reading:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3001215/

Attached as a PDF as well
Thanks so much i may show this /print it for the memory clininc ! Very informative
 

deepetshopboy

Registered User
Jul 7, 2008
238
I also had to matter in to my own hands and try stuff to help my Mum sleep. Have been using Melatonin for a while trying to keep her circadian rhythm in sync with real time. Couldn't get it prescribed and I ended up getting Melatonin Gummies from the US. Can't say that it helped with sleep but she does generally stick to UK time and not Mum time.

As ever with great power comes great responsibility.
'MIND' have a list of sleeping tablets, some available over the counter, with a list of side effects:
And here are a couple of drug interaction checkers:

The Doctor is following the 'NICE' (The National Institute for Health and Care Excellence), guidance so complain to them if you think that the advice regarding falls and sleeping tablets is weighed far too heavily against the damage that lack of sleep causes. However the Doctor is allowed to treat people on a case by case basis.
Thank you unfortunately gp in drs surgery said they couldn’t prescribe anything due to having first getting permission from memory clininc shes now only prescribed it after the go ahead from clininc .i find a pharmacist a good place also to get advice as they meant to be trained for 6 yrs in medication apparently
 

deepetshopboy

Registered User
Jul 7, 2008
238
No experience of it but glad to hear something is helping your dads agitation when sundowning. Its so sad seeing them in distress and if can get something that helps them feel more settled its a blessing. I hope he can continue on it with a benefit to it X
Thank you i hope so too x
 

Tcm

Registered User
Sep 18, 2017
1
There have been other posts about melatonin and its use. The effect is not fully understood or known, but it seems to work in some people but not others. Heavy reading but I have posted this for you, which is quite informative but difficult reading:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3001215/

Attached as a PDF as well
Thanks for this. Really helpful. Have been struggling with mums poor sleep and nothing tried so far has worked. Have been thinking about asking the Gp about Melatonin. Now feel better informed. Thanks