Hello
This is my first time posting, having only recently discovered this forum. My dad (60) was diagnosed with EOA about 5 years ago. He appears to have a rare form of Alzheimer’s whereby his physical capabilities are not yet compromised but he has very severe Aphasia so he can’t understand most words. He gets lost in conversation immediately and as a result is very withdrawn. He has few hobbies as everything is now very difficult for him. He is an incredibly intelligent man and a wonderful father but there seems to be very little of him left. I find his even more upsetting as he still looks the same and he is totally aware of the problem. I sometimes think it would be easier if he had no idea who we were instead of living the nightmare of knowing exactly who we are but not being able to remember our names or understand what we are saying. He does also have personality changes.
I am 28 and am married with a toddler and a 5 month old baby. I am the main support for my parents as I have chosen to live next door and now that they can not afford their home they will move in to part of ours.
The main reason for my posting is that today I am really struggling with the changes to my mum! She is generally acknowledged as a really lovely person and very kind and generous. This is still true but she is getting so bitter and miserable. I completely understand why and I’m not criticising her but I feel like she is also slipping away into someone I don’t recognise. She is so angry at my dad (although obviously the situation not him) and just so self pitying. Again, I don’t blame her with the hand she has been dealt but how can I cope with having to be a prop for both of them?
Any ideas or just support very much appreciated.
Becca x
This is my first time posting, having only recently discovered this forum. My dad (60) was diagnosed with EOA about 5 years ago. He appears to have a rare form of Alzheimer’s whereby his physical capabilities are not yet compromised but he has very severe Aphasia so he can’t understand most words. He gets lost in conversation immediately and as a result is very withdrawn. He has few hobbies as everything is now very difficult for him. He is an incredibly intelligent man and a wonderful father but there seems to be very little of him left. I find his even more upsetting as he still looks the same and he is totally aware of the problem. I sometimes think it would be easier if he had no idea who we were instead of living the nightmare of knowing exactly who we are but not being able to remember our names or understand what we are saying. He does also have personality changes.
I am 28 and am married with a toddler and a 5 month old baby. I am the main support for my parents as I have chosen to live next door and now that they can not afford their home they will move in to part of ours.
The main reason for my posting is that today I am really struggling with the changes to my mum! She is generally acknowledged as a really lovely person and very kind and generous. This is still true but she is getting so bitter and miserable. I completely understand why and I’m not criticising her but I feel like she is also slipping away into someone I don’t recognise. She is so angry at my dad (although obviously the situation not him) and just so self pitying. Again, I don’t blame her with the hand she has been dealt but how can I cope with having to be a prop for both of them?
Any ideas or just support very much appreciated.
Becca x
