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Long time caring

Mimi4me

Registered User
Mar 24, 2013
1
My husband has had this disease for over 19 years. Last 15 have been total home care. Anyone struggling this long, please let me know how you are holding up
 

Chuggalug

Registered User
Mar 24, 2014
8,007
Norfolk
My husband has had this disease for over 19 years. Last 15 have been total home care. Anyone struggling this long, please let me know how you are holding up
That is a huge, long time, Mimi4me. Are you getting support of any kind?
 

Scarlett123

Registered User
Apr 30, 2013
3,802
Essex
My husband has had this disease for over 19 years. Last 15 have been total home care. Anyone struggling this long, please let me know how you are holding up
Not as long as you sweetie, but a long time. John "wasn't right" from early 2001, but it took 2 years to persuade him to seek medical advice. I cared for him for 12 years after his diagnosis, but you've been plodding this damned hard road for a lot longer.

No wonder you're struggling sweetie. What a heroine you are. I hope you're getting lots of help from any, and every source available.
 

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