Long time caring

[Mimi4me]

My husband has had this disease for over 19 years. Last 15 have been total home care. Anyone struggling this long, please let me know how you are holding up

 

[Chuggalug]

My husband has had this disease for over 19 years. Last 15 have been total home care. Anyone struggling this long, please let me know how you are holding up

That is a huge, long time, Mimi4me. Are you getting support of any kind?

 

[Scarlett123]

My husband has had this disease for over 19 years. Last 15 have been total home care. Anyone struggling this long, please let me know how you are holding up

Not as long as you sweetie, but a long time. John "wasn't right" from early 2001, but it took 2 years to persuade him to seek medical advice. I cared for him for 12 years after his diagnosis, but you've been plodding this damned hard road for a lot longer.

No wonder you're struggling sweetie. What a heroine you are. I hope you're getting lots of help from any, and every source available.